5 Creative Ways I Manage Sleep ParalysisThere are few things more terrifying than the nightmares, hallucinations, and sleep paralysis that can plague people with narcolepsy. Before I was able to start medication to treat these symptoms...reactions2comments
The Narcoleptic Metamorphosis: From Social Butterfly to HermitGrowing up, I was always a social butterfly. I always had friends over, was always attending events like concerts and poetry nights. The last thing anyone would have called me...reactions9comments
Conducting My Own Narcolepsy ResearchI recently finished my master's degree in health psychology. I'm so happy because I achieved a distinction which I am incredibly proud of. Completing a master's degree requires a lot...reactions3comments
Did They Break Up With Me Because of My Narcolepsy?Dating with narcolepsy is difficult. From the naps we need frequently, to late-night dinners and activities being a no-go, there are a lot of barriers for us. And what happens...reactions6comments
My First Hallucination ExperienceIt was only when I was diagnosed with narcolepsy at the age of 28 that I started connecting the dots and remembered my very first hallucination. To this day, it...reactions2comments
Where Does Narcolepsy Stigma Come From?When I was first diagnosed with narcolepsy, I internalised all of the stigma that comes with it. Narcolepsy is often not taken seriously by people in society and by healthcare...reactions5comments
My Top 5 Narcolepsy and Sleep PodcastsUntil the pandemic occurred in 2020, I had never listened to a podcast, but after I’d finished a 3-month-long binge of Netflix, I suddenly found myself with nothing to watch...reactions2comments
Productivity and NarcolepsyAs a person with narcolepsy, I struggle with productivity. Brain fog has been one of the most inhibiting symptoms for me. It keeps me going in circles, wasting the little...reactions2comments
The Unhealthy Habit of ComparingThere is one very specific mistake that all of us will likely make at some point in our lives that isn’t beneficial to us in any way, but we do...reactions4comments
Outdoor Adventures With NarcolepsyI went camping with my service dog, Kida, this past weekend. She is a German Shepherd, covered in thick fur that sheds in endless clumps. It was a 40-minute drive...reactions2comments
Mum's the WordToday I would like to introduce my mother, Dorothy, as we commemorate 21 years since I was diagnosed. In this interview, I asked her to share her experiences of parenting...reactions1comment
Accepting Your New RealityI have recently just finished my master's degree at university. When I was younger and doing my GCSE exams at secondary school, I was extremely career driven. My life goal...reactions1comment
A Typical Night of a Person With NarcolepsyA common misconception about narcolepsy is thinking we sleep fine at night. Many people believe that insomnia and narcolepsy are opposites, but that is far from the truth. I don’t...reactions2comments
Communities: Recognising Over CriticisingAlthough there’s much we don’t know about narcolepsy, there is one thing that we can all be sure of: it is different for everyone. As far as I know, there...reactions2comments
Narcolepsy Is More Than Just Excessive Daytime SleepinessExcessive daytime sleepiness is the big picture; however, narcolepsy can affect much more. Whenever I tell someone I have narcolepsy, they seem only to grasp the excessive daytime sleepiness part...reactions1comment
Narcolepsy at Work: How Laughter Can Lead to DenialLaughter can be the best medicine, they say. What people don’t ever mention is that it can also be the worst poison. Like everything in life, it all depends on...reactions1comment
The Difference 17 Years MadeLiving with narcolepsy requires adaptability, realising that things will not necessarily remain the same. I have been living with narcolepsy for the last 2 decades. I have been through seasons...reactions2comments
Narcolepsy and Daytime HallucinationsMost of us living with narcolepsy have experienced hallucinations at some point in our lives. It’s one of the most common symptoms and one that brings up a lot of...reactions31comments
Weird Things People Say About NarcolepsyAs a person with narcolepsy, I’ve gotten a lot of comments about my disease. Some comments about my narcolepsy have been inquisitive, but also supportive and understanding. The larger majority...reactions15comments
The Subtle Art of InconvenienceLast night I decided to be extra on top of things when it comes to my nighttime medication. Usually, I will go to bed and forget to set the alarm...reactions4comments