Narcolepsy Is More Than Just Excessive Daytime SleepinessExcessive daytime sleepiness is the big picture; however, narcolepsy can affect much more. Whenever I tell someone I have narcolepsy, they seem only to grasp the excessive daytime sleepiness part...Reactions0reactionsComments1 comments
Narcolepsy at Work: How Laughter Can Lead to DenialLaughter can be the best medicine, they say. What people don’t ever mention is that it can also be the worst poison. Like everything in life, it all depends on...Reactions0reactionsComments1 comments
The Difference 17 Years MadeLiving with narcolepsy requires adaptability, realising that things will not necessarily remain the same. I have been living with narcolepsy for the last 2 decades. I have been through seasons...Reactions0reactionsComments2 comments
Narcolepsy and Daytime HallucinationsMost of us living with narcolepsy have experienced hallucinations at some point in our lives. It’s one of the most common symptoms and one that brings up a lot of...Reactions0reactionsComments31 comments
Weird Things People Say About NarcolepsyAs a person with narcolepsy, I’ve gotten a lot of comments about my disease. Some comments about my narcolepsy have been inquisitive, but also supportive and understanding. The larger majority...Reactions0reactionsComments15 comments
The Subtle Art of InconvenienceLast night I decided to be extra on top of things when it comes to my nighttime medication. Usually, I will go to bed and forget to set the alarm...Reactions0reactionsComments4 comments
Health Leader Roundtable: Raising Awareness on World Narcolepsy DayWorld Narcolepsy Day is Thursday, September 22, and while medical research has come a long way, narcolepsy remains a widely unknown and misunderstood condition. People living with narcolepsy still face...Reactions0reactionsComments3 comments
World Narcolepsy Day: The Importance of AdvocacyWorld Narcolepsy Day is on September 22 each year. Several organizations hold events to celebrate this day of awareness. Project Sleep was the first organization that I heard about when...Reactions0reactionsComments0 comments
Attempting to Face My FearsI’m annually reminded of how special my life has been on World Narcolepsy Day. This year has been exceptional, though, as I have hit a milestone birthday. Most people would...Reactions0reactionsComments0 comments
Community Views: How Can Healthcare Teams Treat Narcolepsy Better?Healthcare experiences can vary greatly with narcolepsy. Your healthcare team impacts how you feel. Doctors who listen and respond to your concerns create a positive experience. Medical gaslighting and feeling...Reactions0reactionsComments0 comments
How a Daily Routine Helps With My NarcolepsyI never realized how important a routine is until I was diagnosed with narcolepsy. Before narcolepsy, I would go to bed and wake up at different times every day, and...Reactions0reactionsComments2 comments
Top 10 Songs That Uplift MeLast year, I wrote an article entitled “Top 10 Songs That Inspire Me” and I mentioned there that music is a fundamental part of my life. I believe it has...Reactions0reactionsComments1 comments
Sleeping Girl SummerIn the summer of 2022, London was hit with a massive heatwave, with the hottest day on record at 40°C / 104°F. I have always been a person who loves...Reactions0reactionsComments4 comments
How Sleep Meditation Helped My InsomniaI have found that one of the biggest misconceptions surrounding narcolepsy is that people with this condition sleep more than the average person. This is simply untrue. For a long...Reactions0reactionsComments2 comments
Could Fasting Improve Narcolepsy Symptoms Short-Term?Content Note: While there are clinically proven health benefits to intermittent fasting, it is not recommended for children and teens under the age of 18, people who are pregnant or...Reactions0reactionsComments13 comments
World Narcolepsy Day Casper Giveaway!The World Narcolepsy Day Casper Giveaway is now closed. Thank you for your interest! September 22 is World Narcolepsy Day! With approximately 3 million people living with narcolepsy worldwide, World...Reactions0reactionsComments0 comments
Idiopathic Hypersomnia (IH) Awareness Week Casper Giveaway!The IH Awareness Week Giveaway is now closed. Thank you for your interest! Idiopathic Hypersomnia Awareness Week is September 8 through 14. Idiopathic hypersomnia (IH) is a chronic sleep disorder...Reactions0reactionsComments0 comments
My Recent Kayaking Trip: No Energy, No ChoiceMy partner recently had a birthday, and in celebration of that, we decided to take a weekend trip with his parents. We got a cabin on the top of a...Reactions0reactionsComments0 comments
What Does It Mean to Be Invisible?What does it mean to be invisible? I have been thinking about this concept ever since I was introduced to the term "invisible illness" over 2 years ago. The definition of...Reactions0reactionsComments6 comments
Embracing Creativity in NarcolepsyI always hated studying poetry in English Literature. I think it was because we studied poetry that I never connected to. However, over the past couple of years I started...Reactions0reactionsComments4 comments