It’s Me and I Hate ItNarcolepsy to me is the devil. I hate it so much. It has ruined my entire life and I don’t know what...reactions19comments
Narcolepsy PoemI'm sorry brain our immune system attacks us, I too wish there were a cure to free the hypothalamus. Invisible, yet so...reactions2comments
7 StrikesSo, I titled this post '7 strikes' because that's how many I seemingly have against me. We all have things, or strikes...reactions1comment
How I Am Living With NarcolepsyLiving with narcolepsy has not been easy. When I was much younger, I always imagined how other people work without getting tired...reactions9comments
Narcolepsy and MedicareDealing with narcolepsy is difficult enough, but being a senior citizen with narcolepsy, or any rare disease, is unbelievable! I’ve taken amphetamines...reactions3comments
Vicious CycleI swear it is like clockwork every day at around 2:30 PM, the intense fatigue starts to take over. I am at...reactions3comments
Blessed but Feel Cursed!For anyone following this thread who may be looking for support, these resources may be useful. Howdy! My name is Ron, and...reactions5comments
55 Years With Type 1 NarcolepsyI was 26 with one daughter, and 2 more yet to come. Lived in rural Oregon, 68 miles to a doctor and...reactions4comments
A Long Road to NowhereI was diagnosed with narcolepsy in October of 1998. At 41 years old, I was driving from WI to IL every day...reactions4comments
Unloading...I have had narcolepsy type 1 for more than 8 years. I am at a loss for what to do. I lost...reactions6comments
More Than SleepyFor this #WorldNarcolepsyDay, I wrote a bit about what narcolepsy has been for me in an effort to raise awareness. Narcolepsy is...reactions3comments
This Sucks!I’m starting to believe that I’m going to be alone forever at this point. No one lasts too long in my life...reactions8comments
It's Like Waking Up From a DreamSometimes I do ok. I can focus alright, and get things done. But other times, it constantly feels like when you wake...reactions4comments
Narcolepsy has made me an airhead !!!I use to have a really good memory. Now I have short-term memory loss. So much brain fog. I get confused easily...reactions11comments
A Fantastically Terrifying and Sleepy LifeThe balance between fair and being sleepy I remember almost every nightmare. I have had them since I was 4-5 years old...reactions8comments
"All You Do is Sleep"As I sit here and try to put my life into words, I realize that I knew all along something was wrong...reactions14comments
My Life and NarcolepsyBefore I found out I had narcolepsy I was made fun of all the time. I was released when I found out...reactions2comments
Narcolepsy and DreamsI have narcolepsy. I have had dreams about being in a school hall and it would be after the school was closed...reactions6comments
How Narcolepsy Took 20 Years of My LifeWas there ever a time in your life that you knew something was wrong, but neither you nor anyone else could figure...reactions9comments
Narcolepsy with Cataplexy and MSYes, I got a triple threat, well, a quadruple threat for falling if you count the Meniere's Disease on top of it...reactions5comments
