Stories

I'm sorry brain our immune system attacks us, I too wish there were a cure to free the hypothalamus. Invisible, yet so real, always causing me to question what I...

So, I titled this post '7 strikes' because that's how many I seemingly have against me. We all have things, or strikes, about us that make it challenging to cope...

Living with narcolepsy has not been easy. When I was much younger, I always imagined how other people work without getting tired easily. They don’t fall asleep like I do...

Dealing with narcolepsy is difficult enough, but being a senior citizen with narcolepsy, or any rare disease, is unbelievable! I’ve taken amphetamines for many years because they were the only...

I swear it is like clockwork every day at around 2:30 PM, the intense fatigue starts to take over. I am at work sitting at my desk, I feel my...

For anyone following this thread who may be looking for support, these resources may be useful. Howdy! My name is Ron, and I have had narcolepsy for as long as...

I was 26 with one daughter, and 2 more yet to come. Lived in rural Oregon, 68 miles to a doctor and hospital. My wife didn't drive. Besides making a...

I was diagnosed with narcolepsy in October of 1998. At 41 years old, I was driving from WI to IL every day to work and was falling asleep driving, mostly...

I have had narcolepsy type 1 for more than 8 years. I am at a loss for what to do. I lost my job because of folks not understanding it...

For this #WorldNarcolepsyDay, I wrote a bit about what narcolepsy has been for me in an effort to raise awareness. Narcolepsy is more than just being “sleepy” all the time...

I’m starting to believe that I’m going to be alone forever at this point. No one lasts too long in my life because I’m “unreliable" or "unavailable when they need...

Sometimes I do ok. I can focus alright, and get things done. But other times, it constantly feels like when you wake up, and can't quite remember your dream. I'll...

I use to have a really good memory. Now I have short-term memory loss. So much brain fog. I get confused easily and my thoughts get jumbled. Especially when I’m...

The balance between fair and being sleepy I remember almost every nightmare. I have had them since I was 4-5 years old, I could write a book of them. I...

As I sit here and try to put my life into words, I realize that I knew all along something was wrong with me. I was always tired but I...

Before I found out I had narcolepsy I was made fun of all the time. I was released when I found out there was an answer to what was going...

I have narcolepsy. I have had dreams about being in a school hall and it would be after the school was closed and the doors were locked. I would be...

Was there ever a time in your life that you knew something was wrong, but neither you nor anyone else could figure it out? Or, maybe a doctor told you...

Yes, I got a triple threat, well, a quadruple threat for falling if you count the Meniere's Disease on top of it all. I am a high fall risk. I...

I’ve always had to self-advocate. Even as a young girl. I suppose that it prepared me for what was to come. Getting a diagnosis. Most doctors have scoffed at the...