Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

Does this sound like narcolepsy?

Hi. 32YO male. Around one year ago, I suddenly started developing some weird symptoms where I kept randomly passing out during the day. I felt like I weighed 1000 pounds...

was diagnosed and managed for 2 years then

I moved. I just got a new sleep disorder specialist. She stated that I do not have the marker (gene) there, for it is highly unlikely I have Narcolepsy. Two...

Pain

I am new here. I am wondering if muscle or joint pain in different places at different times is at all associated with narcolepsy.?...

Does your daily schedule affect narcolepsy symptoms?

I have an initial consult booked with a sleep specialist in a couple months because I think I could have narcolepsy type 2...Two months is a lot of time to...

Daily Narcolepsy Challenges

What are some of the biggest challenges you face in managing your narcolepsy on a daily basis? From maintaining a sleep schedule to dealing with medication side effects, what narcolepsy...

It's hard saying no to things because of Narcolepsy...

This evening a friend asked me to go shopping with them tomorrow. Of course I wanted to hang out with them and go shopping, so I said 'yes'! Then after...

My strange cataplexy

Dear friends, in some periods of the year I experience a variation of my cataplexy, which has always been and continues to be a fraction of a second. It involves...

Can it be narcolepsy or other disorder

Hello everyone! My name is Desislav,35 years old,i live in Bulgaria. Before almost an year and half ago something strange happened to me. as I was driving my car I...

How bad was your quality of life before diagnosis?

Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me, I would often go entire months without a...

Narcolepsy Flares Around Hormone Cycles

It's been almost a year since I was diagnosed with Narcolepsy and Cataplexy and over the past 6 months, every month, I have really debilitating symptoms and my meds stop...

Categories

Select a category to find topics that interest you.