Community Views: What I Wish My Friends and Family KnewFor many people with narcolepsy, finding comfort and support in friends and family is an essential part of the condition journey. When...reactionscomments
Making a Clean Space AccessibleLiving with a chronic disease like narcolepsy is hard enough, but keeping a clean living space on top of that? It’s virtually...reactionscomments
Is It Me or My Medication?During college, I struggled with anxiety and depression. This was prior to my narcolepsy diagnosis, and at times I wonder if the...reactions6comments
I Am Held Captive by My CataplexyI’ve lost someone close to me, and I am having a hard time both physically and emotionally handling it. Experiencing grief when...reactionscomments
Should You Live Alone With Narcolepsy?When I express how much I want to live on my own again, people always ask me, “Is it a good idea...reactionscomments
Community Perspectives: Narcolepsy in Love, Life, and RelationshipsIt's no secret in this community that living with narcolepsy and maintaining relationships at the same time can come with unique challenges...reactions3comments
Narcolepsy and My Chaotic Relationship With FoodLiving with narcolepsy means that I often struggle to take care of my basic needs. Naturally, narcolepsy has made my relationship with...reactionscomments
Navigating Love and Narcolepsy: A Guide to Dating Someone With NarcolepsyDating someone with narcolepsy can bring unique challenges, but with understanding, communication, and empathy, you can build a strong and fulfilling relationship...reactionscomments
Fight or Flight: A Narcoleptic's Reaction to PainNarcolepsy will rear its quirky little head at the most inconvenient times. It doesn’t care where we are or what we are...reactionscomments
Finding the Right Narcolepsy Treatment Plan Is Like Building a HouseFinding the right narcolepsy treatment plan is like building a house. When I was first diagnosed with narcolepsy, I hoped there would...reactions4comments
To Disclose or Not to Disclose?“You have a brilliant mind,” my professor whispered. Her words tore through the soft tissue of my chest. I felt like a...reactions2comments
Community Views: Parenting With NarcolepsyLiving with narcolepsy can be hard for anyone to manage, but being a parent with narcolepsy and caring for children while managing...reactions2comments
Trying a Weighted Blanket for a Better Night's SleepOne of the things I have recently been really struggling with is my sleep at night. It has been extremely fragmented, and...reactions1comment
School AccommodationsGetting accommodations for school can be hard unless you have a concrete diagnosis. When I was in high school and even middle...reactions5comments
What Are the Long-Term Effects of Narcolepsy?Disease burden is a term doctors use to talk about how much an illness impacts a person’s life. It will come as...reactionscomments
Picking Up the Controller: IH and Video GamesWhen I was a kid, I loved playing video games. The first games I can remember getting my hands on were Barbie...reactionscomments
This Can't Be Happening to MeRecently, I was experiencing some tingling in my foot. I am trying to do a better job of noticing when my body...reactionscomments
Grooming With NarcolepsyGrooming with narcolepsy isn’t for the faint of heart. As a person with narcolepsy, every little bit of effort that I dedicate...reactionscomments
To Work or Not — That IS the Question!I received notice today that vocational rehab has a spot open for me. This program is my last attempt to enter the...reactions1comment
New Year, New Goals: Knowing Your WorthWe have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year...reactionscomments
