Finding My TribeBack in 2020, during the famous pandemic of COVID-19, something wonderful was about to start: something that would change the lives of all those who got involved. At that time...Reactions0reactionsComments5 comments
Narcolepsy in Kids: Are They Born With It?Narcolepsy often begins in childhood or adolescence. But it can look a lot different in kids than in adults. This can make it hard for doctors to diagnose children with...Reactions0reactionsComments6 comments
“Do You Consider Yourself to Be a Disabled Person?”"Do you consider yourself to be a disabled person?" Unfortunately for me, I could answer this in 2 different ways: No, I don’t, because for the better part of my...Reactions0reactionsComments13 comments
A Love Letter to My BedThank you for supporting me. Truly, you do. I spend most of my time swaddled beneath your sheets. My bones press into my mattress, and my mattress holds me up...Reactions0reactionsComments0 comments
If Sleep Is So Important, Why Is the Impact of Narcolepsy So Overlooked?We are always being told about the importance of sleep by health professionals and in the media. One example comes from the Mental Health Foundation (UK), whose article on the...Reactions0reactionsComments7 comments
Meet Tre Burge: Narcolepsy Advocate and Content Creator“I’ve always been creative. Developing 'Sleppy' came from a need to express what I experience every day with narcolepsy – being sleepy,” shares Tre Burge, a content creator and narcolepsy...Reactions0reactionsComments0 comments
How My Diagnosis Helped My GPAIt is interesting how being diagnosed with narcolepsy has significantly improved my GPA. I began my undergraduate career in 2013. I was a different person then — more physically active...Reactions0reactionsComments3 comments
When I Grow Up"What do you want to be when you grow up?" I've always questioned whether it's wrong to ask young kids this question. Is it possible to know the weight of...Reactions0reactionsComments4 comments
Automatic Behaviors Are Disabling When You Have NarcolepsyMy eyes trace the lines of a book One word at a time I swallow each letter and digest The contents within But my gaze starts to shake The world...Reactions0reactionsComments0 comments
Community Views: Describing Life With Narcolepsy in EmojisBefore diagnosis, narcolepsy was perhaps unfamiliar to you — now, at times when you might need to explain this neurological disorder to others, it can be overwhelming to share all...Reactions0reactionsComments0 comments
3 Life-Changing Lessons I've LearnedI learned early on 3 very important lessons that I carry with me to this day, and they have helped me not only in life, but also in dealing with...Reactions0reactionsComments6 comments
Living With PTSD and NarcolepsyI was recently diagnosed with PTSD. Though I’ve been diagnosed and treated for other mental illnesses, such as depression, I overlooked a few of my PTSD symptoms at their onset...Reactions0reactionsComments7 comments
How Common Are Mental Health Disorders With Narcolepsy?Doctors use the term "comorbidity" to describe a condition that occurs at the same time as another condition. Comorbid illnesses can interact in ways that make both worse. A common...Reactions0reactionsComments0 comments
Cataplexy TriggersThere is one particular question about narcolepsy that I would most like to be answered. In my opinion, I feel that when we speak of cataplexy, people's focus seems to...Reactions0reactionsComments8 comments
With Narcolepsy Comes LossI have not had narcolepsy my entire life; my narcolepsy symptom onset occurred in my college years. Whereas some people are diagnosed with narcolepsy very early in life, I was...Reactions0reactionsComments7 comments
The Importance of Sleep Routines and Self-CareI have been diagnosed with narcolepsy type 1 for many years now and have experienced all the usual symptoms. I have phases where my excessive daytime sleepiness is prominent and...Reactions0reactionsComments3 comments
Narcolepsy Ruined My College GraduationMy type 1 narcolepsy onset began in 2016, in the beginning of my junior year of college. My cataplexy attacks, constant uncontrollable sleep attacks, and hallucinations did not respond well...Reactions0reactionsComments2 comments
The Good and Bad of Online CommunitiesDo you belong to an online community or support group? These days, I think it’s safe to say that it’s rare to find someone who doesn’t. The world has drastically...Reactions0reactionsComments0 comments
Can Your Location Impact Your Experience With Narcolepsy?Since being diagnosed with narcolepsy in 2018, my life has unfortunately been less than stable, but this experience offered me the opportunity to live in 3 different countries in the...Reactions0reactionsComments1 comments
Am I a Bad Friend?My partner and I were driving in the car when I turned to him and asked, "Am I a bad friend?" I began to share my thoughts about how living...Reactions0reactionsComments0 comments