The Chronic Illness HouseholdPicture this: 2 best friends living together in their mid-20s, in their dream household, with 2 adorable puppies. We go to cafés every weekend, go to dog parks, watch movies...Reactions0reactionsComments1 comments
Community Views: How Can We Help People Experiencing Cataplexy?The first time someone sees – or experiences – an episode of cataplexy, they may not know what it is.Cataplexy is a sudden loss of muscle tone that leads to...Reactions0reactionsComments2 comments
Narcolepsy Stressors: Monitor, Limit, AvoidWhen it comes to narcolepsy, I believe it’s important to not only know your triggers but to realise which factors exacerbate your symptoms. I was diagnosed in 2018, and it...Reactions0reactionsComments4 comments
Narcolepsy Disrupts My Dental Care!There are a variety of ways that my narcolepsy affects my dental care. From regular oral hygiene practices to dental emergencies, narcolepsy affects it all! Imagine you’re sitting in the...Reactions0reactionsComments2 comments
Summer Boredom and NarcolepsySummertime and I have a love-hate relationship. Summer is the time for getting out and enjoying the warm sunshine. This is usually when families take a vacation and have new...Reactions0reactionsComments4 comments
Solo Thru-Hiking With Narcolepsy: Is It Possible?I have a dream of hiking the Pacific Crest Trail or the Appalachian Trail. My narcolepsy greatly impairs me physically, and I worry about my ability to navigate appropriately despite...Reactions0reactionsComments5 comments
Why Narcolepsy Patients Are Switching from Xyrem® (SXB) to Xywav® (LXB)Doctors have long prescribed sodium oxybate (Xyrem®) for narcolepsy. Xyrem, or SXB, helps with cataplexy, excessive daytime sleepiness, and disrupted nighttime sleep. However, SXB has a lot of sodium in...Reactions0reactionsComments0 comments
Narcolepsy Helped Me Find Something I Love to DoNarcolepsy has become a huge part of my life in many ways. One of the most recent ways is the program I am in for school and my jobs. A...Reactions0reactionsComments2 comments
Still Trying to Accept My LimitsYes! I finally got Jury Duty! I have never been selected before, and it finally happened: I was given the opportunity to contribute to my community, and I was excited!...Reactions0reactionsComments2 comments
My Service Dog Alerts to My Narcolepsy SymptomsLiving with narcolepsy requires a variety of tools. Medication, for example. Adequate napping schedules, too, for many people. Service dogs for narcolepsy are also an option for mitigating symptoms. Unfortunately...Reactions0reactionsComments0 comments
My Experience With Pets and Sleep ParalysisI got my first pet, an adorable puppy, when I was 27 years old. At the time, I had not yet been diagnosed with narcolepsy, so I had no idea...Reactions0reactionsComments12 comments
3 Ways to Maintain Healthy Boundaries with NarcolepsyNarcolepsy can be physically limiting in many ways. Whether it is sleep attacks or cataplexy, narcolepsy symptoms are chronic. These symptoms also require a variety of lifestyle modifications to live...Reactions0reactionsComments4 comments
The Grief of Loss and NarcolepsyThis isn’t the first funeral nor the last one I have been to, but it seems one thing I have become more cognizant about is my legs. As I spent...Reactions0reactionsComments2 comments
The Reality of AdvocacyThere are many things I love about being a narcolepsy advocate. When I was first diagnosed with narcolepsy, I took on all of the stigma associated with narcolepsy and internalised...Reactions0reactionsComments7 comments
How I Combat Brain Fog: Part 2This article is the second installment of a 2-part series. Read Part 1 here!Brain fog is a major symptom of narcolepsy. It makes it difficult for me to focus on...Reactions0reactionsComments2 comments
My Top 7 Narcolepsy BlogsI’ve always been an extremely curious person and can spend hours on the internet simply searching for random things that interest me. When I was diagnosed with narcolepsy, it took...Reactions0reactionsComments4 comments
Community Views: The Earliest Symptoms of NarcolepsyOften, narcolepsy and other sleep disorders are not diagnosed until you're in your 30s or even later. But, looking back, many community members realized that they had displayed signs of...Reactions0reactionsComments0 comments
How I Combat Brain Fog: Part 1This article is Part 1 of a 2-part series on managing brain fog. Read Part 2 here! Brain fog is perhaps one of the most inhibiting symptoms of narcolepsy. It...Reactions0reactionsComments3 comments
The Longest Day of My LifeOne year ago I went abroad for the first time in my life to visit my brother in Sweden. Due to COVID-19 restrictions still being rather tight, the plane was...Reactions0reactionsComments4 comments
"Running Out of Medication" AnxietyAt the moment, I have no specific doctor to support me with my narcolepsy. Having recently moved to another country, I once again find myself searching for the right medical...Reactions0reactionsComments6 comments