Do you go to a narcolepsy meet up? Aside from big conferences like the National Narcolepsy Conference, there are lot's of meet up groups that exist! Let's make them known. What meet up groups have you attended? What...Reactions0reactionsComments0 repliesAwarenessFriends & Family
FeaturedDid you tell your employer?Did you tell your employer you have narcolepsy? What was the conversation like?...Reactions0reactionsComments11 repliesTips & AdviceWork & Employment
The one thing that eliminated my cataplexyYou can live a full and happy life with Narcolepsy Type 1. How do I know this? Because I went scurrying to a Doctor the minute that I started having...Reactions0reactionsComments2 repliesTreatment
FeaturedFill in the blank: My most frustrating narcolepsy symptom is _____.From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...Reactions0reactionsComments104 repliesSymptoms
To Do Lists, Remembering, Note Taking OH My!! Any suggestions on methods, apps, or planners?! I struggle so hard with this and need a paper and electronic method. I take wayyyy too many screenshots, bookmark too much, take notes various ways on my phone, and...Reactions0reactionsComments19 repliesTips & Advice
Dating With NarcolepsyHow does narcolepsy impact your dating life, and what strategies have you found helpful? How can potential partners help someone with narcolepsy feel supported and understood? For those in relationships...Reactions0reactionsComments7 repliesIntimacy & Relationships
Have you felt stigma because of your narcolepsy? Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...Reactions0reactionsComments4 repliesStigmaAwareness
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...Reactions0reactionsComments22 repliesTravelCoping
Narcolepsy mislabeled Some people are misdiagnosed with other health conditions before they finally learn those symptoms are actually due to narcolepsy. With the correct diagnosis and treatment, they find their other diagnoses...Reactions0reactionsComments4 repliesDiagnosis
Trouble with Processing InformationHey guys! I suffer from anxiety and stress whenever I try to process large amounts of information quickly. It's like my brain gets scrambled, and I cannot focus one thing...Reactions0reactionsComments33 repliesMental HealthTips & Advice