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Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

What Are Some Narcolepsy Support Groups?

Support groups and organizations are great resources to find help with narcolepsy. What groups have you heard of, or are a part of? How have these organizations helped you?...

How Did You Get Diagnosed With Narcolepsy?

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Diagnosis delays

Were you misdiagnosed as another health condition first? How long did it take you to get diagnosed with narcolepsy?...

Tips You Wish You Had When You Were First Diagnosed With Narcolepsy

What tips do you wish you could go back in time and give yourself?...

Cataplexy & Intimacy

I really don’t want to be posting this, since my or anyone else’s sex life isn’t something I ever want to discuss in a public forum, but I have questions...

Is Eating After Taking a Xywav Dose Drug Abuse?

I keep getting told every single time I late night snack that I'm abusing Xywav at this point because I'm up snacking. Even if I'm only snacking an hour past...

A poem about hypersomnia

Her Hypersomnia Once swift to get up, she now trembles While dreaming of a rising sun. Her eyes, heavy, resist the call of light. Her mind, foggy, fails to focus...

Narcolepsy Comorbidities

Do you have any other health conditions alongside narcolepsy? Have you found any effective ways to manage both your narcolepsy and other condition(s)? Share in the comments below!...

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Narcolepsy Misconceptions

What are some of the biggest misconceptions about narcolepsy?...

Has narcolepsy affected your eating habits?

Our sleeping and eating patterns are often intertwined. Has narcolepsy affected your eating habits? - The time you eat? The way you eat? The things you eat? - What helps...

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