Fill in the blank: The hardest thing about living with narcolepsy is ___________.What is the hardest thing about living with narcolepsy? Share your answers below!...Reactions 0 reactions Comments77 repliesCoping
FeaturedDating With NarcolepsyHow does narcolepsy impact your dating life, and what strategies have you found helpful? How can potential partners help someone with narcolepsy feel supported and understood? For those in relationships...Reactions 0 reactions Comments0 repliesIntimacy & Relationships
Who do you turn to for support?When you need it most, who do you turn to for support? Family, friend(s), online community, therapist, local support groups, etc.?...Reactions 0 reactions Comments6 replies
troble with getting diagnosisThe following youtube video is my experience with seeking a diagnosis for the symptoms I have For over 12 years I was back and forth to doctors begging for help...Reactions 0 reactions Comments1 repliesDiagnosis
Addressing Narcolepsy MisconceptionsWhat misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...Reactions 0 reactions Comments13 repliesFriends & FamilyStigma
Doctors disagree on diagnosis, medication anxietyLast year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...Reactions 0 reactions Comments5 repliesCopingDaytime sleepinessDiagnosis
Will you take our In America survey and help others understand the impact of narcolepsy? The In America survey is now closed. To learn more about the challenges of living with narcolepsy, we are conducting our In America survey. By taking our survey, you can...Reactions 0 reactions Comments0 replies
Do You Prefer A Set Timer For Your Naps?When taking a nap, do you prefer to set a timer for a specific amount of time, or to sleep until you wake up? Which works better for you and...Reactions 0 reactions Comments5 repliesTips & Advice
FeaturedDid you tell your employer?Did you tell your employer you have narcolepsy? What was the conversation like?...Reactions 0 reactions Comments11 repliesWork & EmploymentTips & Advice
Alarm clock suggestions? All throughout college before my diagnosis people from professors would suggest I set an alarm or ask me if I can “just use an alarm clock” to make it to...Reactions 0 reactions Comments8 repliesTips & Advice