Stories

I have learned to accept that most people will never understand what it’s like to live with Narcolepsy. Throughout the years I have struggled to understand myself and what I...

In 2018 I had a stomach bleed that shut down one kidney, brain swelling, septic and in a coma. All of the Drs kept telling my family they didn't know...

Hi I’m Rachel Nesmith from DALLAS, TX. I’m making the World a better place “One Melody at a Time”. Why do I feel so confident that music can change public...

Hi everyone, I figured I would share my story to shed some light on how sleep apnea caused me to have symptoms of narcolepsy. I struggled with severe hypersomnia for...

I hope this letter finds you well. I am reaching out to you with a heartfelt plea on behalf of my daughter to find a a support group and a...

I have come a long way in life; I’ve realized that I have been my own biggest critic and that hasn’t been good for my mental health. I was angry...

Currently, I am washing my medication out of my system, in order to participate in a clinical trial for a new medication that is believed to be a potential cure...

I have type 2 Narcolepsy. Though I don't have all of the symptoms of N1, the sleepiness as well as the recurring fatigue, are the same. It seems to me...

The journey to receiving a confirmed diagnosis of Narcolepsy 1, was a long and extremely frustrating one, to say the least. Initially, when I was having symptoms I would chalk...

I was diagnosed with Narcolepsy this past February. I was stunned but not afraid. It never occurred to me there was something ‘wrong’ with all the sleeping I was doing...

Want to share your own narcolepsy story? Submit here. I wrote this as a Facebook status a few months ago when I was having a really rough night. I felt...

I was a surgeon. I thought I knew a little bit about sleep. I guess, being a specialist, I should have known that the discoveries and advancements in sleep medicine...

Narcolepsy to me is the devil. I hate it so much. It has ruined my entire life and I don’t know what I’m going to do. I find myself lost...

I'm sorry brain our immune system attacks us, I too wish there were a cure to free the hypothalamus. Invisible, yet so real, always causing me to question what I...

So, I titled this post '7 strikes' because that's how many I seemingly have against me. We all have things, or strikes, about us that make it challenging to cope...

Living with narcolepsy has not been easy. When I was much younger, I always imagined how other people work without getting tired easily. They don’t fall asleep like I do...

Dealing with narcolepsy is difficult enough, but being a senior citizen with narcolepsy, or any rare disease, is unbelievable! I’ve taken amphetamines for many years because they were the only...

I swear it is like clockwork every day at around 2:30 PM, the intense fatigue starts to take over. I am at work sitting at my desk, I feel my...

For anyone following this thread who may be looking for support, these resources may be useful. Howdy! My name is Ron, and I have had narcolepsy for as long as...

I was 26 with one daughter, and 2 more yet to come. Lived in rural Oregon, 68 miles to a doctor and hospital. My wife didn't drive. Besides making a...