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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy & a Cardiovascular Co-morbidities

I have recently discovered that Narcolepsy, more specifically the typical lifestyle adopted by those with narcolepsy, indirectly increases the risks of heart issues. The primary lifestyle or behavior that many...

How long did it take you to truly accept your narcolepsy diagnosis?

In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

What would you tell a current or future romantic partner about how to love you as a person with narcolepsy?

Narcolepsy community members reveal how they want to be loved....

Does anyone experience recurring catatonia with cataplexy and constant sleep attacks?

Health services in my area are unaware of narcolepsy resulting in misdiagnosis and incorrect treatments. At age 18 sudden onset of symptoms started during the pandemic, psychiatry and neurology ruled...

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

Paddle board safety?

I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...

Does this sound like cataplexy, or could it be something else?

I fear this may be a long post, but I'm really hoping it can help me with finding answers. So, almost 2 years ago I first learned what cataplexy was...

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Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

Dating With Narcolepsy

How does narcolepsy impact your dating life, and what strategies have you found helpful? How can potential partners help someone with narcolepsy feel supported and understood? For those in relationships...

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