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Read conversations, start a discussion, and connect with others about narcolepsy.

Tips You Wish You Had When You Were First Diagnosed With Narcolepsy

What tips do you wish you could go back in time and give yourself?...

How long did it take to get diagnosed with narcolepsy?

At What Age Were You Diagnosed With Narcolepsy?

Cataplexy & Intimacy

I really don’t want to be posting this, since my or anyone else’s sex life isn’t something I ever want to discuss in a public forum, but I have questions...

Is Eating After Taking a Xywav Dose Drug Abuse?

I keep getting told every single time I late night snack that I'm abusing Xywav at this point because I'm up snacking. Even if I'm only snacking an hour past...

A poem about hypersomnia

Her Hypersomnia Once swift to get up, she now trembles While dreaming of a rising sun. Her eyes, heavy, resist the call of light. Her mind, foggy, fails to focus...

Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...

Narcolepsy Comorbidities

Do you have any other health conditions alongside narcolepsy? Have you found any effective ways to manage both your narcolepsy and other condition(s)? Share in the comments below!...

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Narcolepsy Misconceptions

What are some of the biggest misconceptions about narcolepsy?...

Does this sound like cataplexy, or could it be something else?

I fear this may be a long post, but I'm really hoping it can help me with finding answers. So, almost 2 years ago I first learned what cataplexy was...

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