VENT: How are you doing? (Honestly)Life with narcolepsy can be challenging. This is a safe space to vent about what's happening with you. How are you doing?...reactions8repliesCoping
Have you felt stigma because of your narcolepsy? Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...reactions19repliesStigmaAwareness
A video series, an article, and a tool.My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...reactionsrepliesCoping
Narcolepsy & a Cardiovascular Co-morbiditiesI have recently discovered that Narcolepsy, more specifically the typical lifestyle adopted by those with narcolepsy, indirectly increases the risks of heart issues. The primary lifestyle or behavior that many...reactions13repliesAwarenessTips & Advice
How long did it take you to truly accept your narcolepsy diagnosis?In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....reactions2repliesCopingDiagnosis
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...reactions31repliesTravelCoping
What would you tell a current or future romantic partner about how to love you as a person with narcolepsy?Narcolepsy community members reveal how they want to be loved....reactionsrepliesIntimacy & Relationships
Does anyone experience recurring catatonia with cataplexy and constant sleep attacks?Health services in my area are unaware of narcolepsy resulting in misdiagnosis and incorrect treatments. At age 18 sudden onset of symptoms started during the pandemic, psychiatry and neurology ruled...reactions1replyCataplexy
NightmaresDo you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...reactions24repliesDreamsSymptoms
Paddle board safety?I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...reactions4repliesExerciseCataplexyTips & Advice