Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

VENT: How are you doing? (Honestly)

Life with narcolepsy can be challenging. This is a safe space to vent about what's happening with you. How are you doing?...

Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...

A video series, an article, and a tool.

My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...

Narcolepsy & a Cardiovascular Co-morbidities

I have recently discovered that Narcolepsy, more specifically the typical lifestyle adopted by those with narcolepsy, indirectly increases the risks of heart issues. The primary lifestyle or behavior that many...

How long did it take you to truly accept your narcolepsy diagnosis?

In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

What would you tell a current or future romantic partner about how to love you as a person with narcolepsy?

Narcolepsy community members reveal how they want to be loved....

Does anyone experience recurring catatonia with cataplexy and constant sleep attacks?

Health services in my area are unaware of narcolepsy resulting in misdiagnosis and incorrect treatments. At age 18 sudden onset of symptoms started during the pandemic, psychiatry and neurology ruled...

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

Paddle board safety?

I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...

Categories

Select a category to find topics that interest you.