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Read conversations, start a discussion, and connect with others about narcolepsy.

Experience with Tufts Medicare Insurance and Xyrem/Xywav

I am turning 65 soon and will have to change insurance plans when I go on Medicare. I have been on Xyrem for a few years now. I live in...

Encouraging words

Do anyone experience people thinking it's a mental issue when you tell them or explain to them your Narcolepsy disorder? Anyway I speak hope and gladness to each of you...

World Narcolepsy Day is September 22nd!

What does World Narcolepsy Day mean to you and how do you plan to celebrate the day? Share below....

Narcolepsy and the Workplace

How has narcolepsy affected your ability to work? What was the hardest part about working with narcolepsy? Do you have any tips for others who are navigating narcolepsy in the...

Narcolepsy topics

My Narcolepsy w/o cataplexy disorder is so bad until I when I'm passenger seat riding in the car with my wife I falls asleep swiftly like if me and my...

How do you manage brain fog?

Is brain fog one of your narcolepsy symptoms? What are some things that help you cope?...

Medication rollercoaster

For some reason none of these medications are working for me. Xyrem made me feel well rested but at night, I had severe stomach aches. I was sleepwalking and hallucinating...

What triggers your cataplexy?

What is your biggest cataplexy trigger? Have you found ways to help manage your triggers?...

Filing for Disability

Are there any tips or advice you can give to those who want to file for disability benefits? Have you been through the process and how was it?...

New symptom

Hi everyone, This is my first post as I have not been diagnosed. I have been struggling for years with excessive daytime sleepiness. It seems to just get worse as...

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