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Read conversations, start a discussion, and connect with others about narcolepsy.

How do you manage brain fog?

Is brain fog one of your narcolepsy symptoms? What are some things that help you cope?...

Medication rollercoaster

For some reason none of these medications are working for me. Xyrem made me feel well rested but at night, I had severe stomach aches. I was sleepwalking and hallucinating...

What triggers your cataplexy?

What is your biggest cataplexy trigger? Have you found ways to help manage your triggers?...

Filing for Disability

Are there any tips or advice you can give to those who want to file for disability benefits? Have you been through the process and how was it?...

My Sister Needs Help with Her Narcolepsy

My sister has extreme symptoms of narcolepsy, sudden collapse of muscles, and falling to the ground, the worst of them all is affecting her speech functions. A few months after...

Service dog ?

Does anyone have a service dog to help manage symptoms of narcolepsy? What was the profess to get a service dog like? Has it been helpful for you?...

Semester off from college?

I’ve always been a highly motivated, strong student, but I just cannot keep up with my work anymore due to narcolepsy and the way my stimulant medication exacerbates my already...

Have you found sunlight to affect your sleep?

Have you found sunlight (or the lack thereof) to affect your ability to sleep? For example, during daylight saving time in the summertime when there is a lot more sun...

Shopping with narcolepsy! Do you have any strategies for coping with symptoms?

What are your experiences like shopping while living with narcolepsy? Do you have any strategies that make things easier while shopping? Please share with us!...

Featured

How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in the morning feeling half decent, and then felt...

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