CataplexyWhat is your experience with cataplexy, do you have triggers? How do you explain it to others?...Reactions0reactionsComments5 repliesCataplexySymptomsTips & Advice
SleepTo me whenever I fall asleep suddenly and wake back up it seems like I've slept a long time when in actually it may have been like 15 or 20...Reactions0reactionsComments1 repliesDaytime sleepiness
I've been thinking about publishing this pome(of sorts) that I wrote. I've written this pome-kinda-thing about my experiences with narcolepsy, and I've had a few writers look at it, with positive responses. But I wanted to get the feedback of others...Reactions0reactionsComments1 repliesHealthcare TeamFriends & Family
EncouragingHello people, God has a spiritual purpose for all of our lives, lets pray that we fill those purposes. I know the world is hurting right now but God says...Reactions0reactionsComments3 repliesTips & Advice
Community meetings?Hello! I am curious to learn if there are any online meetings here. I live in Russia and the situation with narcolepsy support in my country is literally non-existent....Reactions0reactionsComments4 repliesAwarenessCoping
Question about sleep aidsI had symptoms for 6 years and was finally diagnosed with N2 about 3 months ago. I know that stimulants are common in trying to treat EDS...but I've also found...Reactions0reactionsComments2 repliesTreatmentDaytime sleepinessSymptoms
Is this a weird (unusual) symptom?I’ve been struggling with EDS for a while now. I’m not diagnosed, but fairly certain that I’m somewhere on the spectrum. While I want to know more, there is one...Reactions0reactionsComments3 repliesDaytime sleepiness
Covid 19 Vaccine Hello- I am 30 years old have narcolepsy with cataplexy (NT1) and I am reaching out to see if anyone with narcolepsy has received the vaccine? If you have, did...Reactions0reactionsComments7 repliesTips & AdviceHealthcare TeamResearch & Clinical Trials
Portrayal of Narcolepsy in the MediaAre there any movies or tv shows that you feel have inaccurately portrayed narcolepsy? Do you feel that the way narcolepsy is portrayed in media is different than your personal...Reactions0reactionsComments1 repliesStigma
Encouraging wordsGood morning everyone. This is the day that the Lord has made,We will rejoice and be Glad in it- Psalms118:24...Reactions0reactionsComments1 repliesCaregiving