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Read conversations, start a discussion, and connect with others about narcolepsy.

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How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in the morning feeling half decent, and then felt...

Falling asleep all of a sudden

I notice when I fall asleep all of a sudden that be the deepest sleep ever and I feel relaxed when I awake. How about everyone else?...

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feel very exhausted

i found out i had nacolepsy last year.i lost my job because of it ,i am takeing meds for it now.but at times i feel very exhausted and tired all...

sleep paralysis or cataplexy?

What is it called, when waking up and you can't move or communicate, but are aware of all going on around you and can hear conversations?...

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ADHD

For some of you who have ADHD : Do you have the same stimulants for ADHD & Narcolepsy? Does it work for both at the same time ?...

Work

What do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to brain storm jobs and maybe business or side...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy? How does narcolepsy affect your experience? What do...

Do you make your bed?

After you get up to start your day, do you make your bed or decide to skip it because you will be sleeping in it again soon?...

Travel Tips

Does anyone have tips for traveling long distances? How do you prepare before the trip? What do you bring with you to help manage symptoms and maximize comfort?...

Do you go to a narcolepsy meet up?

Aside from big conferences like the National Narcolepsy Conference, there are lot's of meet up groups that exist! Let's make them known. What meet up groups have you attended? What...

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