FeaturedWhat's the worst narcolepsy advice you've ever gotten?Whether from friends or healthcare professionals, share some of the worst advice you've received....Reactions 0 reactions Comments32 repliesTips & Advice
RepeatingI'm in a large circle of people introducing myself and answering a question, everyone has the same response however, mine is opposite. By the time they get to me, I'm...Reactions 0 reactions Comments6 repliesAwarenessCoping
Workplace accommodationsHave you ever requested accommodations for your narcolepsy from an employer? If you did, how was your experience? Did your employer offer resistance? Were they supportive? Have you ever had...Reactions 0 reactions Comments7 repliesInsurance & DisabilityWork & EmploymentTips & Advice
My first cataplexy injury and my friends didn't show me any comfortI was at an event on the weekend and my cataplexy got me a few times. The last one was particularly bad and I crumpled on the grass right in...Reactions 0 reactions Comments1 repliesCataplexyFriends & FamilyCoping
FeaturedResources for ParentsIs anyone here a caregiver for a child, teen or other loved one with narcolepsy? How do you manage taking care of someone with narcolepsy? Are there any tips you...Reactions 0 reactions Comments3 repliesCaregiving
i also have bad insommaafter i get off work and go home. it takes for ever for me go sleep...Reactions 0 reactions Comments1 repliesInsomnia
Diagnosed with Narcolepsy with Cataplexy in 1977. I started on Provigil after participating in the drug trial study. Would like contact from members who have been on Provigil or Nuvigil(Armodafinil...Would like to talk with Narcoleptics in their 60's, 70's, and 80's who have taken Provigil or NUVIGIL. WANT TO KNOW HOW THEY ARE DOING. HAVE THEY CONTINUED ON NUVIGIL...Reactions 0 reactions Comments4 repliesAwarenessCoping
Dexamphetamine UK ??Hi I'm from Wales UK and diagnosed 6 years ago with narcolepsy with cataplexy and idiopathic hypersomnia after misdiagnoses for 34 years initially I was given dexamphetamine but I was...Reactions 0 reactions Comments1 repliesCataplexyNewly DiagnosedPrescription Medication
was diagnosed and managed for 2 years thenI moved. I just got a new sleep disorder specialist. She stated that I do not have the marker (gene) there, for it is highly unlikely I have Narcolepsy. Two...Reactions 0 reactions Comments8 repliesDiagnosisSymptomsSleep Study
Controlled Medications and Life Expectancy I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...Reactions 0 reactions Comments2 repliesHealthcare TeamPrescription MedicationInsurance & Disability