Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

What are the worst side effects medication has given you?

I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be? I know it's different...

Featured

Which narcolepsy symptom impacts your daily activities the most?

In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have any tips on how to deal with it?...

Featured

Narcolepsy Misconceptions

What are some of the biggest misconceptions about narcolepsy?...

Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!...

Tips You Wish You Had When You Were First Diagnosed With Narcolepsy

What tips do you wish you could go back in time and give yourself?...

Advice

Hi all I've just got my results from my polysomnography and MSLT. Before this I reduced my dose and came off Pregabalin, Fluoxetine and Zolpidem. I'm currently taking no medication...

Narcolepsy medications and heart problems

I just turned 50 and have been talking Adderall for almost 30 years and while I am not thrilled to have to take amphetamines, I have been fortunate to live...

Sleep meds

I have narcolepsy and have been taking zopiclone 15mg. I no longer find it effective. What are others taking?...

Trusting God for healing

Im encouraging everyone thats dealing with Narcolepsy to trust in God for healing and do know that with strong faith healing is possible just as God healed people in the...

Cataplexy war scars

I'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...

Categories

Select a category to find topics that interest you.