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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy/ Doctors/ St. Louis

I am looking for sleep doc suggestions from Narcoleptics that experience chronic Cataplexy in the St. Louis area....

Prayer

Father God I thank you for all you've done and I kindly ask that you watch over all of us suffering with Narcolepsy. Protect our minds and actions please sir...

Stopping Medication

Does anyone ever feel as though they would prefer to live without medication?...

Narcolepsy Sucks

I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY" EXCEPT FOR MY DAUGHTERS ARE AWOL, SELFISH, IGNORANT...

Parenting with narcolepsy type 1

Hello, I am Jazmane, I am 30 years old, and I am a single mother of 2 handsome boys. Can you imagine the energy of a 7- and 2-year-old everyday...

Has anyone else experienced emotional abuse because of undiagnosed Narcolepsy symptoms?

Growing up with an emotionally abusive parent and undiagnosed Narcolepsy obviously did some lasting damage. I was constantly told I was making up symptoms, exaggerating, being dramatic, attention-seeking, lazy, selfish...

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...

Narcolepsy and Pregnancy

Has anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a minute at most. Lately i have been stuck...

Experience With Alcohol.

It's kind of a strange question, but I've been curious ever since I was diagnosed about the effect that alcohol and the amount consumed have on people with Narcolepsy, especially...

Lumryz

What's people's experience who have changed from Xywav/Xyrem to Lumryz? I'm considering on changing to the new medicine, but I want to know how it has helped other people, plus...

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