FeaturedActive 2 days agoMy story: Can anyone relate?Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight. This post will be a bit long, I...reactions5repliesSymptomsDaytime sleepinessSleep Study
FeaturedActive 2 days agoFill in the blank: My most frustrating narcolepsy symptom is _____.From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...reactions142repliesSymptoms
Active yesterdayDriving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...reactions31repliesTravelCoping
Active 4 days agoTips for Managing Brain FogDo you experience brain fog? If so, how do you deal with it? What tips do you have for others that also experience brain fog?...reactions14repliesSymptomsTips & Advice
Active 4 days agoHow long did it take you to truly accept your narcolepsy diagnosis?In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....reactionsrepliesCopingDiagnosis
What would you tell a current or future romantic partner about how to love you as a person with narcolepsy?Narcolepsy community members reveal how they want to be loved....reactionsrepliesIntimacy & Relationships
Does anyone experience recurring catatonia with cataplexy and constant sleep attacks?Health services in my area are unaware of narcolepsy resulting in misdiagnosis and incorrect treatments. At age 18 sudden onset of symptoms started during the pandemic, psychiatry and neurology ruled...reactions1replyCataplexy
NightmaresDo you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...reactions24repliesDreamsSymptoms
Paddle board safety?I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...reactions4repliesExerciseCataplexyTips & Advice
VENT: How are you doing? (Honestly)Life with narcolepsy can be challenging. This is a safe space to vent about what's happening with you. How are you doing?...reactions4repliesCoping