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Read conversations, start a discussion, and connect with others about narcolepsy.

FeaturedActive 4 days ago

My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight. This post will be a bit long, I...

FeaturedActive 2 days ago

Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

FeaturedActive today

Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been on max-dose stimulants for so long that my...

Active 2 days ago

The one thing that eliminated my cataplexy

You can live a full and happy life with Narcolepsy Type 1. How do I know this? Because I went scurrying to a Doctor the minute that I started having...

FeaturedActive 4 days ago

Narcolepsy and Stress

Do you find that stress increases your daytime sleepiness or other symptoms?...

Active 4 days ago

Memory - Still Looking for Ideas

My memory document is a work in process still - maybe forever... I have been following my memory symptoms for almost two years, and I'm witing a paper on my...

Active 4 days ago

Tips for Managing Brain Fog

Do you experience brain fog? If so, how do you deal with it? What tips do you have for others that also experience brain fog?...

Active 7 days ago

VENT: How are you doing? (Honestly)

Life with narcolepsy can be challenging. This is a safe space to vent about what's happening with you. How are you doing?...

Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...

A video series, an article, and a tool.

My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...

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