Lazy and Not Smart
It took many years to get diagnosed with narcolepsy.
Stigmatized with Narcolepsy
I was told that I was lazy and was not as smart as other students in high school.
I was told many times to go to my room and study or get my reading done if that was the homework. I would loose my train of thought or fall asleep.
As a teenager I was made to go hunting with my father for deer. I would fall asleep and get reprimanded on why I was sleeping when I should be hunting. As I got older I ended up with a thyroid condition for a doctor that as treating me for migraine.
I had my thyroid taken out and then ended up with a back injury from work. This is when it was found that being on heavy meds for the pain I was sleeping all the time.
They ended up giving me a sleeping pill on top of the other meds. I didn't have a life.
Finally diagnosed with narcolepsy
Then I met my second wife that I am with now. She said something is wrong when I get up have my coffee and fall asleep again without pain meds.
That is when I had the sleep study and found out I had type 2 narcolepsy. I was 39 years old, now 61.
Life is so different after you get diagnosed. I end up try to be my own patient advocate.
Now I know there are more people living with this condition and I don't have to be alone anymore. Thanks for communinity forums like this.
Always Sleepy.
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