How Narcolepsy Leads to Disenfranchised GriefWhen we are diagnosed with narcolepsy, there is a common mixture of feelings that arise. It is incredibly validating to know that our experiences are real and not “all in...Reactions0reactionsComments4 comments
Summer Sleep: Overheated and ExhaustedAs I was growing up, I always had a bit of a weird chip on my shoulder about living in Australia. My mum grew up in England, and I sometimes...Reactions0reactionsComments7 comments
Meet Our Advocate - Elle WalesAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...Reactions0reactionsComments0 comments
Keep People With Narcolepsy Alive, Not Just AwakeIn another article, I discussed my personal journey with suicidal thinking over the course of my teens and early twenties. This was intricately tied in with my narcolepsy symptoms, to...Reactions0reactionsComments4 comments
Managing Guilt and Privilege as a Narcolepsy AdvocateFor anyone who has read my work in the past, you may be aware that I’ve been taking a new medication for about 3.5 years. Xyrem has allowed me to...Reactions0reactionsComments4 comments
Learning How it Feels to SleepAs a person with narcolepsy, I’ve been sleeping a lot of my life away ever since I was 13. No one who knew me would ever doubt my ability to...Reactions0reactionsComments9 comments
Fighting the Desire to Sleep ForeverContent Note: This article describes suicidal ideation. If you or a loved one are struggling, consider reading our mental health resources page. Suicide. It’s a hard topic to broach, but...Reactions0reactionsComments2 comments
The Struggle and Stigma of Narcolepsy MedicationsAs people with narcolepsy, most of us take some type of medication every day. They help us to live as close to “normal” as possible. However, acquiring the medications we...Reactions0reactionsComments8 comments
Narcolepsy, Dreams, and the "Emotional Hangover"Most people with narcolepsy will know what it’s like to experience wild dreams. With our brains hard-wired to lapse into REM at a moment’s notice, we can sometimes feel like...Reactions0reactionsComments35 comments
Relationships and Narcolepsy: 3 Important ConversationsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments0 comments
Can Narcolepsy Take a Seat?Imagine you’re on a train on your way home from work. It’s been a long day. Despite taking your regular nap at lunch you can feel yourself fading. The gentle...Reactions0reactionsComments1 comments
Relationships and Narcolepsy: Managing EmotionsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments3 comments
Relationships and Narcolepsy: Communicating Our NeedsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments4 comments
Relationships and Narcolepsy: Disclosing While DatingWhen it comes to relationships, every couple will have their issues – but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments2 comments
Putting Negative Self-Talk to SleepAs a person with narcolepsy, I’ve often been told that I’m strong and resilient for getting through each day. It’s true, I won’t deny that overcoming the many obstacles that...Reactions0reactionsComments3 comments
