Approaching IH
Been testing with multiple (4) MSLTs, and 3 different clinics, I'm approaching what is now considered Idiopathic Hypersomnia (IH). I thought I had NT2, but the third clinic, a proper hospital, said it was probably not the deal. I'm still not formally diagnosed.
Today, not every day, I took my double dosage of Methylphenidate at 9:30 am, and a single espresso around Noon. Been awake all day, feeling rather energetic. Nice.
But this usually translates into crazy sleeping over the next 2 days. We shall see.
I wanted to see what other people to do try to create a normal schedule, given meds are involved, modifying it with small amounts of coffee, and any other options or ideas. I'd love to get your insight. This stuff is completely interrupting my life in many ways.
Cheers
Well I would be comfortable with a solid diagnosis. Two clinics in different positions isn't the best place to be.
Thanks. I've already posted in there, from what I remember.
Hi
I'm glad you're getting closer to a diagnosis even if it's not what you expected. Do you feel comfortable with a potential diagnosis of idiopathic hypersomnia?
You will always be welcome in this community and you will find others here who also have IH, but I wanted to share a link to our IH community as well: https://idiopathic-hypersomnia.net/. I also moderate in that community. If you create this same forum post there, you might get responses that are even more relevant to IH.
I hope you get lots of input here from others who are struggling to achieve a balance. Please keep us updated. I'll be thinking of you.
- Lori (Team Member)
