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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy Flares Around Hormone Cycles

It's been almost a year since I was diagnosed with Narcolepsy and Cataplexy and over the past 6 months, every month, I have really debilitating symptoms and my meds stop...

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When experiencing cataplexy, what’s the best thing someone can do to help?

How can people support you when experiencing a cataplexy attack? Share your suggestions below!...

Xywav and Stimulants

I'm currently on 70 mg Vyvanse every morning with 10 mg Adderall IR as needed for later in the day. I am about to try Xywav for the first time...

What about the end?

So, I'm quite young and no longer fall asleep driving- but when I was doing that often, I became very worried about the end. But now, I had a thought-...

Autoimmune Disorders

Okay, so some of us have heard this and some haven't- that a person can be genetically predispositioned to narcolepsy and can begin experiencing symptoms after an infection or virus...

What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?

New strategies...

Heart Attack with Narcolepsy

Has any one under 50 had a heart attack also with narcolepsy? If so.. What meds can you take now? (Narcolepsy Facebook member)...

Cataplexy Over The Years

Does anyone else feel as though their cataplexy is getting worse with time?...

New Year's Plans

I was just curious how everyone celebrates the new year? Personally, I struggle to stay awake past 10pm. My friends are having a get-together with fun games and activities planned...

How are your holidays looking?

Hey! Just wanted to know how everyone is coping with the upcoming holidays, if you're having any difficulties or even if you just have any cool plans?? Wishing everyone happy...

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