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Read conversations, start a discussion, and connect with others about narcolepsy.

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...

What is your experience of alcohol?

Hey everyone! Recently i've been out drinking with friends while taking modafinil mylan, without realising that there might be serious consequences to this. However, I have done it twice now...

Cataplexy Treatment - Venlafaxine

I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so...

Dexamphetamine UK ??

Hi I'm from Wales UK and diagnosed 6 years ago with narcolepsy with cataplexy and idiopathic hypersomnia after misdiagnoses for 34 years initially I was given dexamphetamine but I was...

Xywav and Stimulants

I'm currently on 70 mg Vyvanse every morning with 10 mg Adderall IR as needed for later in the day. I am about to try Xywav for the first time...

Heart Attack with Narcolepsy

Has any one under 50 had a heart attack also with narcolepsy? If so.. What meds can you take now? (Narcolepsy Facebook member)...

Now what?

Hello. I was just diagnosed with IH and Narcolepsy II at 41 years old. I have been misdiagnosed so many times, the most recent being ADHD 2 years ago. I...

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