WorkWhat do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to brain storm jobs and maybe business or side...Reactions0reactionsComments3 repliesDaytime sleepinessCopingDepression
Attending Events With Narcolepsy Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy? How does narcolepsy affect your experience? What do...Reactions0reactionsComments0 repliesAwarenessCoping
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...Reactions0reactionsComments22 repliesTravelCoping
Extreme lethargy, lower concentration and awareness Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right meds....Reactions0reactionsComments1 repliesCopingTreatment
Diagnosed with Narcolepsy with Cataplexy in 1977. I started on Provigil after participating in the drug trial study. Would like contact from members who have been on Provigil or Nuvigil(Armodafinil...Would like to talk with Narcoleptics in their 60's, 70's, and 80's who have taken Provigil or NUVIGIL. WANT TO KNOW HOW THEY ARE DOING. HAVE THEY CONTINUED ON NUVIGIL...Reactions0reactionsComments8 repliesAwarenessCoping
How to manage I was diagnosed at 65 years of age. The symptoms have worsened not at 70. I find it strand when Dr. Google says the disease is not progressive. Sometimes I...Reactions0reactionsComments1 repliesCopingNewly Diagnosed
Let's Make a List of our Memory SymptomsI thought it would be great for us to have a really good list of our memory symptoms. After looking around I found no such list out there (if anybody...Reactions0reactionsComments7 repliesSymptomsResearch & Clinical TrialsCoping
Does anyone else feel helpless?For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...Reactions0reactionsComments4 repliesNewly DiagnosedPrescription MedicationCoping
FeaturedWhich narcolepsy symptom impacts your daily activities the most?In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have any tips on how to deal with it?...Reactions0reactionsComments9 repliesCopingSymptoms
Cataplexy war scarsI'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...Reactions0reactionsComments11 repliesCataplexyCopingSymptoms