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Read conversations, start a discussion, and connect with others about narcolepsy.

A video series, an article, and a tool.

My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...

Narcolepsy and terrible nightmares?

I have now got to the stage where I am actually frightened to fall asleep and I try my absolute best to fight sleep (which as all narcoleptics know is...

Sleep specialists opinon

I collapse on a daily basis because i fall aslepp i have had 7 fractures (confirmed) in last 3 yrs. I was told i do not have narcolepsy because its...

A poem about hypersomnia

Her Hypersomnia Once swift to get up, she now trembles While dreaming of a rising sun. Her eyes, heavy, resist the call of light. Her mind, foggy, fails to focus...

Stopping Medication

Does anyone ever feel as though they would prefer to live without medication?...

Narcolepsy Sucks

I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY" EXCEPT FOR MY DAUGHTERS ARE AWOL, SELFISH, IGNORANT...

Narcolepsy and Pregnancy

Has anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a minute at most. Lately i have been stuck...

Work

What do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to brain storm jobs and maybe business or side...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy? How does narcolepsy affect your experience? What do...

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

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