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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

Addressing Narcolepsy Misconceptions

What misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...

Paralysis or cataplexy

I’ve been taking medication and been diagnosed for narcolepsy for the last year now. The medications are helping almost all symptoms however...

Waking up wondering if someone's been in the house

Has anyone ever had the feeling of someone being in their house or violating them when they were sleeping and then you...

Associated conditions

Learning that you not only have narcolepsy but also severe Obstructive Sleep Apnea with 48 episodes an hour and then after researching...

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

Scared to try Xyrem

I’ve just been prescribed Xyrem to manage my cataplexy and plan to start it this weekend. I’m scared in case it makes...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a...

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