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Family and narcolepsy

In our poll, we asked how you handle family members who don't understand narcolepsy.

Share why you chose to either explain your symptoms again or let it go unsaid.

  1. How I have handled my daughter: we just stay away from everone not right, but it keeps the talk down. Right now my daughter as went from 295 pounds down to 142 pounds she does not want to talk to any one she sits and just looks around try to tell her doctor they seem not to care all they say lock her up so they can fine the right meds well my daughter since she as been 14 years old as took ever antdreppss pill you can take sad thing about they would put on 2 or3 diffrents once at time so where do you go for help if you dont want to lock your child up

    1. My heart really aches for you and your daughter. I wish you could find a doctor who is willing to investigate further without committing her and is interested in separating out the true mental health from the symptoms and effects of narcolepsy. I know it's been a rough road for you both. Sending lots of gentle hugs your way. - Lori (Team Member)

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