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Not lazy just sick

My entire adult life was destroyed by this. I have always wondered why I couldn't keep a job for more than 3 days before I couldn't get out of bed to go to work. I would present myself to doctors in an ER and tell them that I had to take 1,600mgs of caffeine just to get out of bed and for over 25 years I've been asking them "why am I so tired all the time"? All I got was chronic fatigue syndrome. Now I know that my hypocretin/orexin-1 level is 30.1% , typically it should be between 40-60% and at 40% that's determined to be undetectable. I've learned to be able to describe my symptoms in detail to doctors that better helps them understand what's wrong with me.

  1. You know who I am it's just I'm posting like this until I learn how to switch back to being me, Steven in Arizona

  2. How maddening to be gaslighted time after time like that, . What finally led to a diagnosis? Are you on a good managment plan now? Thinking of you and wishing you the best. - Lori (Team Member)

    1. I have always admired you for how you help us Lori, thank you

    2. You are so kind, . Thank you! I'm glad you are finally getting the treatment you need and deserve. This has been such a long battle for you. It must be a relief in someways to learn you are neurodivergent. Now that you know, I hope you will embrace it. Warm wishes. - Lori (Team Member)

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