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Not lazy just sick

My entire adult life was destroyed by this. I have always wondered why I couldn't keep a job for more than 3 days before I couldn't get out of bed to go to work. I would present myself to doctors in an ER and tell them that I had to take 1,600mgs of caffeine just to get out of bed and for over 25 years I've been asking them "why am I so tired all the time"? All I got was chronic fatigue syndrome. Now I know that my hypocretin/orexin-1 level is 30.1% , typically it should be between 40-60% and at 40% that's determined to be undetectable. I've learned to be able to describe my symptoms in detail to doctors that better helps them understand what's wrong with me.

  1. How maddening to be gaslighted time after time like that, . What finally led to a diagnosis? Are you on a good managment plan now? Thinking of you and wishing you the best. - Lori (Team Member)

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