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Read conversations, start a discussion, and connect with others about narcolepsy.

Let's Make a List of our Memory Symptoms

I thought it would be great for us to have a really good list of our memory symptoms. After looking around I...

Does anyone else feel helpless?

For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling...

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Which narcolepsy symptom impacts your daily activities the most?

In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have...

Cataplexy war scars

I'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I...

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

Being able to clean one room at a time.

I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Falling asleep and falling down

Every night no matter how I try to stay awake while heading to the bathroom or sitting on the toilet, I fall...

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Pre-Diagnosis

Hello everyone, I am suspected to have narcolepsy. I've been to doctors and a neurologist who all agree with this assumption. Currently...

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