Diagnosis of HypersomniaHi all, (I wanted to post this as a different discussion, but this is really a follow-up/update on my initial question found here: https://narcolepsy.sleep-disorders.net/forums/does-your-daily-schedule-affect-narcolepsy-symptoms#reply-164293.) My sleep study has been completed...Reactions 0 reactions Comments1 repliesDiagnosisNewly DiagnosedCoping
Narcolepsy Sucks I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY" EXCEPT FOR MY DAUGHTERS ARE AWOL, SELFISH, IGNORANT...Reactions 0 reactions Comments1 repliesCopingFriends & Family
How bad was your quality of life before diagnosis?Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me, I would often go entire months without a...Reactions 0 reactions Comments12 repliesWork & EmploymentSymptomsCoping
Stopping MedicationDoes anyone ever feel as though they would prefer to live without medication?...Reactions 0 reactions Comments17 repliesPrescription MedicationCopingSide Effects
What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?New strategies...Reactions 0 reactions Comments1 repliesCopingExerciseIntimacy & Relationships
How are your holidays looking?Hey! Just wanted to know how everyone is coping with the upcoming holidays, if you're having any difficulties or even if you just have any cool plans?? Wishing everyone happy...Reactions 0 reactions Comments12 repliesSymptomsCopingMental Health
Will you take our In America survey to share the truth about life with narcolepsy?From sleep attacks to cataplexy, there’s so much more to life with narcolepsy than most people know. Help contribute to a better understanding of living with narcolepsy by taking our...Reactions 0 reactions Comments3 repliesAwarenessCopingResearch & Clinical Trials
Does anyone else feel helpless?For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...Reactions 0 reactions Comments4 repliesNewly DiagnosedPrescription MedicationCoping
FeaturedWhat is the one thing you can't live without?If you could only have one thing that you couldn't live without that helps you cope with your symptoms, what would that be? (Can be a thing, a person, a...Reactions 0 reactions Comments4 repliesTips & AdviceCopingSymptoms
I am not diagnosed but would like to know some tips to deal with excessive tiredness and nap attacksSo I don't have a diagnosis yet, and may not even have narcolepsy. I have Long-COVID and it is presenting as that but who even knows with that sort of...Reactions 0 reactions Comments2 repliesCopingDaytime sleepinessSymptoms