Too Hot to HandleI love traveling and I love sunny warm weather. I will admit that with my narcolepsy, summer can be a little more taxing. But still if I am looking for... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
Interview With a Fellow NarcolepticLiving with narcolepsy can be a challenge and is not always easy. One of the things that I struggled with in the early days of my narcolepsy was a feeling... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
Navigating Love and Narcolepsy: A Guide to Dating Someone With NarcolepsyDating someone with narcolepsy can bring unique challenges, but with understanding, communication, and empathy, you can build a strong and fulfilling relationship. Here's a guide to help you navigate the... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
New Year, New Goals: Knowing Your WorthWe have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year brings new goals, resolutions, ideas, and targets. We... By Kerly Joy Bwoga4 min readBookmark for laterReactions 0 reactions Comments0 comments
Narcolepsy: A Comorbidity Magnet?Recently I have been unable to get one question out of my mind: Is narcolepsy a magnet for other illnesses, disorders, and diseases? It has led to me to trying to answer another... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments8 comments
Narcolepsy Extrovert to IntrovertI recently heard this analogy: An introvert wakes up in the morning with 5 coins, and every interaction takes a coin, and at the end of the day, they're depleted. An... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments3 comments
The Next StepI recently earned my barbering diploma. I will officially get my certificate in September or October. Last year, I decided to go back to school to learn a new skill... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments1 comments
Living With Narcolepsy and ParasomniaLiving with a sleep disorder can be a challenging and often isolating experience. Two out of the 5 sleep disorders I have are parasomnia and narcolepsy, both of which can... By Kerly Joy Bwoga4 min readBookmark for laterReactions 0 reactions Comments0 comments
Narcolepsy and Memory: When Recollections VaryI have a memory of a vivid hallucination with my narcolepsy. It's a traumatic memory. I remember feeling frightened. I remember running to get away from danger. I can remember charging from... By Kerly Joy Bwoga2 min readBookmark for laterReactions 0 reactions Comments0 comments
Let’s Talk About SleepSomething I have been wondering about recently is how similar our sleeping and dreaming habits are within a family. Are my vivid dreams, restless legs syndrome, and sleep paralysis just... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
Does Anyone Look Like Me? Underdiagnosed and UnderrepresentedSince I was a small child, I have always appreciated representation. I enjoy seeing myself represented on television, in adverts, and in literature. I think this is something I recognize and... By Kerly Joy Bwoga4 min readBookmark for laterReactions 0 reactions Comments3 comments
Limitless, Yet LimitedI have a thirst for learning. I am always interested in developing a new skill, doing something new. I get restless and bored with the mundane. I crave a little... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
Searching for DiversityI have been actively seeking out fellow people with narcolepsy for over 2 decades. I started out in online groups where I was talking with people online. Most of the... By Kerly Joy Bwoga4 min readBookmark for laterReactions 0 reactions Comments2 comments
What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?New strategies...Reactions 0 reactions Comments1 repliesCopingExerciseIntimacy & Relationships
"Narcolepsy? What's That?"The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with narcolepsy by attending the Narcolepsy UK conferences, but... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Narcoleptic Insomniac ParadoxI sleep a lot. I fall asleep on the bus, the train, in waiting rooms, in church. Slightly busy days for the average person can completely wipe me out. I... By Kerly Joy Bwoga2 min readBookmark for laterReactions 0 reactions Comments9 comments
Falling Into Another DiagnosisI have been living with obstructive sleep apnea for about 12 years. Whilst I had heard of sleep apnea before I was diagnosed and was aware of some of the... By Kerly Joy Bwoga4 min readBookmark for laterReactions 0 reactions Comments4 comments
Cataplexy vs. MeI have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my medication was regulated, I felt like the cataplexy... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments2 comments
The War Between Sleeping and DreamingAs a person with narcolepsy, I sleep a lot, and I am almost always sleepy. It is often a surprise to people when I say I do not enjoy sleeping... By Kerly Joy Bwoga5 min readBookmark for laterReactions 0 reactions Comments1 comments
If Cats Could Talk (Part 2): Having a BrotherThis article is part of a series written from the perspective of Kerly's cat, DJ. You can read Part 1 here. Back by popular demand. Guess who's back, back again... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments1 comments