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Read conversations, start a discussion, and connect with others about narcolepsy.

Surprising Symptoms of Narcolepsy

What are your most surprising symptoms of narcolepsy? How do you manage them?...

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Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

Tips for Parents with Narcolepsy

For those who are parents in the community, are there any tips you could give to other parents living with narcolepsy?...

Narcolepsy and weight loss injections (Wagvoy, etc)

I discovered this forum as I began to research these injections commonly used as a means of treatment for weight loss. {Please do try and bare with me here! I'll...

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Who do you turn to for support?

When you need it most, who do you turn to for support? Family, friend(s), online community, therapist, local support groups, etc.?...

Have you heard about the narcolepsy drug recall?

A few days ago, FiercePharma reported that a drug prescribed for narcolepsy and ADHD, Zenzedi, is being recalled because a pharmacist found antihistamine tablets in one of the prescription bottles...

troble with getting diagnosis

The following youtube video is my experience with seeking a diagnosis for the symptoms I have For over 12 years I was back and forth to doctors begging for help...

Addressing Narcolepsy Misconceptions

What misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...

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