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Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

Pregnancy with narcolepsy - treatment options?

I am planning on getting pregnant soon but I am concerned with my narcolepsy. I haven't done a sleep study yet - just basing the diagnosis off of what my...

Narcolepsy & Finances

Do you feel that narcolepsy has had an impact on your finances? In what ways (employment changes, increased healthcare costs, etc.)?...

Does anyone else feel helpless?

For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...

How long did you take to find the right treatment?

I know there are many different drugs to deal with narcolepsy. Unfortunately, not all of them are legal in every country (some of them are not allowed in Chile, where...

What is your most common nighttime hallucination?

Is it creepy figures? Shapes or sparkles on the walls? Piles of laundry turning into what you think is your dog? Share with us in the comments below!...

What are the worst side effects medication has given you?

I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be? I know it's different...

Featured

Which narcolepsy symptom impacts your daily activities the most?

In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have any tips on how to deal with it?...

Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!...

Advice

Hi all I've just got my results from my polysomnography and MSLT. Before this I reduced my dose and came off Pregabalin, Fluoxetine and Zolpidem. I'm currently taking no medication...

Narcolepsy medications and heart problems

I just turned 50 and have been talking Adderall for almost 30 years and while I am not thrilled to have to take amphetamines, I have been fortunate to live...

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