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Read conversations, start a discussion, and connect with others about narcolepsy.

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a...

Narcolepsy and Pregnancy

Has anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a...

Experience With Alcohol.

It's kind of a strange question, but I've been curious ever since I was diagnosed about the effect that alcohol and the...

Lumryz

What's people's experience who have changed from Xywav/Xyrem to Lumryz? I'm considering on changing to the new medicine, but I want to...

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How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in...

Falling asleep all of a sudden

I notice when I fall asleep all of a sudden that be the deepest sleep ever and I feel relaxed when I...

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feel very exhausted

i found out i had nacolepsy last year.i lost my job because of it ,i am takeing meds for it now.but at...

sleep paralysis or cataplexy?

What is it called, when waking up and you can't move or communicate, but are aware of all going on around you...

Work

What do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy?...

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