How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Childhood of MisdiagnosesSince being diagnosed, I have been looking back more and more on my childhood and how I would act. I personally think I have had narcolepsy since I was 2... By Tara OConnor4 min readBookmark for laterReactions 0 reactions Comments8 comments
Narcolepsy's Cloak of InvisibilityThere is some debate as to whether narcolepsy is truly an invisible illness. I mean if you look close enough you can see the signs that someone is struggling with... By Judy Ferguson2 min readBookmark for laterReactions 0 reactions Comments12 comments
Learning How it Feels to SleepAs a person with narcolepsy, I’ve been sleeping a lot of my life away ever since I was 13. No one who knew me would ever doubt my ability to... By Elle Wales4 min readBookmark for laterReactions 0 reactions Comments9 comments
Lonely NightsOne of the most difficult side effects of living with narcolepsy is the inability to stay up late. People don’t wake up early to party, they stay up late. So... By Gabrielle Keith4 min readBookmark for laterReactions 0 reactions Comments4 comments
Mom Life and Narcolepsy: ToddlersBeing a mom with toddlers is an adventure. Being a mom with toddlers and narcolepsy is straight up bonkers. If you have been following along with my Mom Life and... By Keeley Lange3 min readBookmark for laterReactions 0 reactions Comments4 comments
Approaching Workplace Accommodations (Part 2): When Good Accommodations Go BadIt’s important to stay vigilant when assessing an accommodations request. Are the accommodations providing support and opportunities for success? Is the employer honoring the requests while maintaining confidentiality? Accommodations require... By Matthew Horsnell4 min readBookmark for laterReactions 0 reactions Comments5 comments
When Sleep Becomes Scary: Narcolepsy and NightmaresNightmares, as anyone knows, can be pretty scary. Luckily, they tend to occur mostly in childhood and only happen on rare occasions in adulthood. However, nightmares are one of the... By Bella Kilmartin4 min readBookmark for laterReactions 0 reactions Comments24 comments
Household Tips Part 2: Daily Routines and PlanningIf you find yourself struggling to get things done around the house, here are some things I do to help myself so I do not feel overwhelmed. Start with making... By Jenean3 min readBookmark for laterReactions 0 reactions Comments1 comments
Narcolepsy Runs in the FamilyI’m pretty sure we all have those strange family stories that get passed down from generation to generation, but I often entertained people with the stories of my grandfather. My... By Vanessa3 min readBookmark for laterReactions 0 reactions Comments6 comments
Online Support GroupsI have recently connected with some amazing people through different narcolepsy organizations. There are several social media groups on Facebook, Instagram, and Twitter that I have found. There is one... By Tara OConnor3 min readBookmark for laterReactions 0 reactions Comments5 comments
Eating Healthy When You Are So Tired You Can't Get off the CouchEver have a day or month or even a year where you are so tired it seems impossible to eat healthy? Yeah, me too. Then when you go to eat, you... By Keeley Lange3 min readBookmark for laterReactions 0 reactions Comments1 comments
Advantages of NarcolepsyDuring this pandemic, I have learned the importance of positive thinking. When you think positively, positive things happen in your life; however, whenever thinking of narcolepsy, the first thing that... By Alyssa Walker2 min readBookmark for laterReactions 0 reactions Comments7 comments
When “How Did You Sleep?” Becomes a Loaded QuestionSuch a simple question that we all ask our loved ones regularly. "How did you sleep?" Each morning when my partner wakes up, we will always ask each other this... By Judy Ferguson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Approaching Workplace Accommodations – Part One How to approach my employer was one of the hardest decisions I faced after my diagnosis. Accommodations are required to meet the demands of my job descriptions. This is an... By Matthew Horsnell4 min readBookmark for laterReactions 0 reactions Comments3 comments
Small Steps Towards HealthyIt’s hard knowing you used to be healthy, and now you’re not. It’s hard to look at pictures of yourself from a few months ago and feel like a totally... By Gabrielle Keith3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Not-So-Normal Realization: Part 1I had always been the sleepy kid. My mom would tell the story about how my first night home from the hospital; I slept for 8 hours. Anyone who has... By Lindsey Kizer3 min readBookmark for laterReactions 0 reactions Comments2 comments
Frankincense: A Natural Aid for NarcolepsyThe frankincense tree has been on the planet for a really long time. One of its most notable acknowledgments is that the Wise Men brought it as a gift to... By Keeley Lange3 min readBookmark for laterReactions 0 reactions Comments0 comments
Sleep Is My SuperpowerLooking back on the last 10 years of my life, there were definitely some red flags that should have led me to seek help for my sleepiness. My friends and... By Judy Ferguson2 min readBookmark for laterReactions 0 reactions Comments3 comments
Sexual Health and Narcolepsy With Cataplexy: A Male PerspectiveLet’s talk about sex, baby Let’s talk about you and me Let’s talk about all the good things And the bad things that may be In 1990, the duo Salt-N-Pepa... By Matthew Horsnell3 min readBookmark for laterReactions 0 reactions Comments0 comments