Deep Pressure Therapy: How My Service Dog Shortens My Sleep AttacksIt is 10:00 in the morning and I’m having my first sleep attack of the day. My vision blurs and the room...reactions2comments
What Really Happens if I Call the Suicide Hotline?"One of the most depressing things about narcolepsy is knowing that this is forever with no way of being able to cure...reactionscomments
Broken ExpectationsFamily can be your biggest support system, and they can also be a huge obstacle. Wouldn’t it be great if it was...reactionscomments
Cataplexy: Is Seeing Believing?Narcolepsy is a chronic, invisible illness. This means that many of our symptoms are unable to be seen by the outside world...reactionscomments
Narcolepsy Makes Housework HardI’ve always been the kind of person that kept their personal space clean. Even as a kid, it was a ritual for...reactions5comments
Managing Stress and Narcolepsy: Part 1Narcolepsy and stress often go hand-in-hand. Cataplexy is a temporary paralysis that people with type 1 narcolepsy (like me) experience. It is...reactions4comments
Managing Stress and Narcolepsy: Part 2This article is Part 2 of "Managing Stress and Narcolepsy." Read Part 1 here!Narcolepsy isn’t often easy to live with. There are...reactions6comments
Pickles and GigglesHave you ever been so overwhelmed that you collapse and become paralyzed? You can hear people trying to help you, but you...reactions2comments
Narcolepsy: My University ExperienceMost people will never understand the difficulties of living with narcolepsy. For many people, studying is already a hard enough task, but...reactionscomments
Internalized AbleismAccording to the definition given by Britannica, ableism is a type of discrimination where able-bodied people are seen as normal and superior...reactions3comments
Health Leader Roundtable: Raising Awareness on World Narcolepsy DayWorld Narcolepsy Day is Thursday, September 22, and while medical research has come a long way, narcolepsy remains a widely unknown and...reactions3comments
Lost Friendships Are Not Your FaultIn my opinion, throughout the years, making friends and keeping friends with idiopathic hypersomnia (IH) has been hard. I’ve lost friends because...reactions3comments
Stimulants: A Bittersweet Taste of Momentary FreedomI still remember my very first experience with stimulants. It was an experience that I can't forget even if I tried. For...reactionscomments
Does Anyone Look Like Me? Underdiagnosed and UnderrepresentedSince I was a small child, I have always appreciated representation. I enjoy seeing myself represented on television, in adverts, and in literature...reactions3comments
Who I Was Before NarcolepsyI miss the old me. The me that I used to be, before narcolepsy. I miss that person that could stay up...reactionscomments
The Reality of Imposter Syndrome in Narcolepsy"Imposter syndrome" is a term that has become well-known in recent years. Although it’s frequently associated with success-related situations, it’s also very...reactionscomments
Pack Your Bags! Preparing for an Overnight Sleep Study and MSLTLet's talk about preparing you on what to expect and what to bring for a test that helps diagnose narcolepsy! As a...reactionscomments
Cataplexy and the Privilege of EmotionsCataplexy is potentially the symptom I resent most. And in my opinion, one of the most underrated symptoms of narcolepsy. Many people...reactions18comments
Why Narcolepsy Patients Are Switching from Xyrem® (SXB) to Xywav® (LXB)Doctors have long prescribed sodium oxybate (Xyrem®) for narcolepsy. Xyrem, or SXB, helps with cataplexy, excessive daytime sleepiness, and disrupted nighttime sleep...reactionscomments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading...reactionscomments
