Cataplexy and the Privilege of EmotionsCataplexy is potentially the symptom I resent most. And in my opinion, one of the most underrated symptoms of narcolepsy. Many people...reactions18comments
Why Narcolepsy Patients Are Switching from Xyrem® (SXB) to Xywav® (LXB)Doctors have long prescribed sodium oxybate (Xyrem®) for narcolepsy. Xyrem, or SXB, helps with cataplexy, excessive daytime sleepiness, and disrupted nighttime sleep...reactionscomments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading...reactionscomments
Cataplexy vs. MeI have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my...reactions4comments
Creating a Sleep Paralysis DemonEvil (2019) is a television show that depicts many psychological and medical incidents in supernatural ways. Produced by CBS Studios and King...reactions4comments
How Sleep Meditation Helped My InsomniaI have found that one of the biggest misconceptions surrounding narcolepsy is that people with this condition sleep more than the average...reactions2comments
My Experience With Pets and Sleep ParalysisI got my first pet, an adorable puppy, when I was 27 years old. At the time, I had not yet been...reactions12comments
Sleeping Girl SummerIn the summer of 2022, London was hit with a massive heatwave, with the hottest day on record at 40°C / 104°F...reactions4comments
Summer Boredom and NarcolepsySummertime and I have a love-hate relationship. Summer is the time for getting out and enjoying the warm sunshine. This is usually...reactions4comments
New Year, Same Old NarcolepsyRinging in the New Year can be a great opportunity to set intentions for the upcoming year. After the whirlwind of the...reactions11comments
The Full Impact of NarcolepsyThere are so many things that make our journey with narcolepsy more difficult than it has to be, but the biggest one...reactions2comments
Narcolepsy and GriefGrief is something that I have been used to from a young age. It is extremely hard to go through, but narcolepsy...reactions1comment
Nights Out With NarcolepsyHere in the United Kingdom, the legal drinking age is 18. We Brits are known for loving a good night out, whether...reactions9comments
Recovering With Narcolepsy: A Tale of 2 ConditionsHave you had the pleasure of getting shingles? "Pleasure" is not the right word, of course. There is a lot of pain...reactions5comments
COVID-19 Updates, April 7: Face Coverings, Testing, & MedicationsIt is common to feel overwhelmed about COVID-19: so much information changing day-to-day. Here are some of the important COVID-19 stories that...reactionscomments
My Struggles With Sleep and NutritionI have recently realized that my relationship with sleep and nutrition is not the best. I struggle with a fear of missing...reactions1comment
Ways to Raise Awareness About Your Sleep DisorderThe National Sleep Foundation’s Sleep Awareness Week® is celebrated in March each year. As you likely know, many people don’t know much...reactionscomments
Searching for DiversityI have been actively seeking out fellow people with narcolepsy for over 2 decades. I started out in online groups where I...reactions2comments
"Prove You're Disabled"... Again!The first time I went through the application process for disability benefits, it was too much to handle. I received many denial...reactions5comments
"Narcolepsy? What's That?"The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with...reactionscomments
