I Love You, but Will You Return to Work Please?I would like to begin by saying I love my husband! He is my best friend and soulmate. We hardly ever squabble, and he is very understanding of my narcolepsy...Reactions0reactionsComments3 comments
6 Ways Narcolepsy Has Affected My Mental HealthNarcolepsy is a condition for which there is no cure. This means that those of us who have it will live with it for the rest of our lives. This...Reactions0reactionsComments4 comments
Finding the Right Doctor (Part 2): Making the SwitchThis article is the second of a series. Be sure to check out Part 1, Finding the Right Doctor: What Poor Care Looks Like. By this point, I had been...Reactions0reactionsComments0 comments
‘Brittany Runs A Marathon’: What About When Lifestyle Changes Don’t Fix You?Brittany Runs a Marathon (available for streaming on Amazon Prime Video) is a tale of the arduous journey of one woman in making healthy lifestyle choices that ultimately leave her...Reactions0reactionsComments5 comments
Working SacrificeIt may sound strange, but my biggest fear in relation to my narcolepsy...is having my professionalism called into question. This may not relate to everyone, but being a single, childless...Reactions0reactionsComments9 comments
If Cats Could TalkMy name is DJ Bwoga, and I am a Russian blue mixed cat. Kerly adopted me in December 2017. When I would think of adoption, I hoped to be chosen...Reactions0reactionsComments3 comments
Hiking With Narcolepsy: Managing Symptoms on the TrailA forest of greens and browns surrounds me. Dirt crunches beneath my boots. My German Shepherd service dog is happily pulling me along the trail. I am passing a trail...Reactions0reactionsComments4 comments
My New Role in the Narcolepsy CommunityWhen I first started going to online support groups with Wake Up Narcolepsy, I never would have guessed I would be where I am today. I remember my first ever...Reactions0reactionsComments6 comments
Paperwork Can Be Challenging!I was involved in a serious car accident 7 months ago. We were in downtown Houston on the interstate and were stopped in traffic. The person behind us did not...Reactions0reactionsComments2 comments
Am I Unreliable Now?It’s 4 PM, and I am exhausted. Earlier I’d driven twice in one day, which is more than I can typically handle. My roommate pouts across the room after I’d...Reactions0reactionsComments4 comments
Finding the Right Doctor (Part 1): What Poor Care Looks LikeI’m sure a lot of women will agree that we don’t always get fair treatment from doctors. Many times our concerns are brushed aside or flat out denied. We are...Reactions0reactionsComments0 comments
Xywav® (calcium, magnesium, potassium, and sodium oxybate) Approved for Idiopathic Hypersomnia in AdultsOn August 12, 2021, the U.S. Food and Drug Administration (FDA) approved Xywav® (calcium, magnesium, potassium, and sodium oxybate) oral solution to treat adults with idiopathic hypersomnia (IH). There are...Reactions0reactionsComments0 comments
Crying Over Spilled MilkYou know those days where you feel like you are being tested by the universe? Anything and everything that could go wrong seems to be going wrong, and you are...Reactions0reactionsComments4 comments
What Is Automatic Behaviour in Narcolepsy?Automatic behaviour is when someone experiences a temporary brief sleep episode during an activity (e.g., eating and writing) and automatically continues with the activity for a few seconds or minutes...Reactions0reactionsComments32 comments
Story Sharing: Working Through Imposter Syndrome and Internal GatekeepingBefore starting working as an advocate, I had spent more than 2 years unemployed. This was due to a combination of factors, but it mostly boiled down to ill health...Reactions0reactionsComments23 comments
Gaming With NarcolepsyThe world of gaming is a vibrant, albeit intimidating, space. The intersectional nature of my identity greatly impacts my experience. As a gamer who identifies as female and is a...Reactions0reactionsComments6 comments
Why I Choose Patience (Even When It's Hard)“Wow, I wish I could fall asleep whenever I want to.” “You get to take naps during work? You’re so lucky!” “I can’t tell if I have narcolepsy or 2...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like narcolepsy. Often, we...Reactions0reactionsComments0 comments
Community Views: The Impact of Narcolepsy SymptomsNarcolepsy has deep and lasting consequences for daily living. Many situations, whether at work, home, or school, are made more challenging by narcolepsy symptoms. To better understand the impact of...Reactions0reactionsComments0 comments
The Concept of AcceptanceWhat is acceptance? The Oxford Learner's Dictionary describes it as “The quality of being willing to accept an unpleasant or difficult situation.” Acceptance is essentially a common and unremarkable word...Reactions0reactionsComments10 comments