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Read conversations, start a discussion, and connect with others about narcolepsy.

Active 2 days ago

Parenting with narcolepsy type 1

Hello, I am Jazmane, I am 30 years old, and I am a single mother of 2 handsome boys. Can you imagine the energy of a 7- and 2-year-old everyday...

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How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in the morning feeling half decent, and then felt...

At What Age Were You Diagnosed With Narcolepsy?

Narcolepsy mislabeled

Some people are misdiagnosed with other health conditions before they finally learn those symptoms are actually due to narcolepsy. With the correct diagnosis and treatment, they find their other diagnoses...

How long did it take to get diagnosed with narcolepsy?

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Diagnosis delays

Were you misdiagnosed as another health condition first? How long did it take you to get diagnosed with narcolepsy?...

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Have you ever been diagnosed with idiopathic hypersomnia?

Have you been diagnosed with idiopathic hypersomnia (IH)? Idiopathic hypersomnia (IH) is a chronic sleep disorder that causes excessive daytime sleepiness. You can find more information about this condition on...

How Did You Get Diagnosed With Narcolepsy?

troble with getting diagnosis

The following youtube video is my experience with seeking a diagnosis for the symptoms I have For over 12 years I was back and forth to doctors begging for help...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...

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