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Read conversations, start a discussion, and connect with others about narcolepsy.

Active 3 days ago

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy? How does narcolepsy affect your experience? What do...

Work

What do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to brain storm jobs and maybe business or side...

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

Extreme lethargy, lower concentration and awareness

Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right meds....

Diagnosed with Narcolepsy with Cataplexy in 1977. I started on Provigil after participating in the drug trial study. Would like contact from members who have been on Provigil or Nuvigil(Armodafinil...

Would like to talk with Narcoleptics in their 60's, 70's, and 80's who have taken Provigil or NUVIGIL. WANT TO KNOW HOW THEY ARE DOING. HAVE THEY CONTINUED ON NUVIGIL...

How to manage

I was diagnosed at 65 years of age. The symptoms have worsened not at 70. I find it strand when Dr. Google says the disease is not progressive. Sometimes I...

Let's Make a List of our Memory Symptoms

I thought it would be great for us to have a really good list of our memory symptoms. After looking around I found no such list out there (if anybody...

Does anyone else feel helpless?

For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...

Featured

Which narcolepsy symptom impacts your daily activities the most?

In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have any tips on how to deal with it?...

Cataplexy war scars

I'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...

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