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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy Sucks

I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY"...

Parenting with narcolepsy type 1

Hello, I am Jazmane, I am 30 years old, and I am a single mother of 2 handsome boys. Can you imagine...

Has anyone else experienced emotional abuse because of undiagnosed Narcolepsy symptoms?

Growing up with an emotionally abusive parent and undiagnosed Narcolepsy obviously did some lasting damage. I was constantly told I was making...

Narcolepsy and Pregnancy

Has anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a...

Experience With Alcohol.

It's kind of a strange question, but I've been curious ever since I was diagnosed about the effect that alcohol and the...

Lumryz

What's people's experience who have changed from Xywav/Xyrem to Lumryz? I'm considering on changing to the new medicine, but I want to...

Featured

How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in...

Falling asleep all of a sudden

I notice when I fall asleep all of a sudden that be the deepest sleep ever and I feel relaxed when I...

Featured

feel very exhausted

i found out i had nacolepsy last year.i lost my job because of it ,i am takeing meds for it now.but at...

sleep paralysis or cataplexy?

What is it called, when waking up and you can't move or communicate, but are aware of all going on around you...

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