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Read conversations, start a discussion, and connect with others about narcolepsy.

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

Extreme lethargy, lower concentration and awareness

Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy?...

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Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been...

Narcolepsy & Finances

Do you feel that narcolepsy has had an impact on your finances? In what ways (employment changes, increased healthcare costs, etc.)?...

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a...

just started having parasomnia nonsense

A few months ago, i started punching and kicking my wife in my sleep. We've been married for 40 years, narcoleptic for...

Addressing Narcolepsy Misconceptions

What misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...

Paralysis or cataplexy

I’ve been taking medication and been diagnosed for narcolepsy for the last year now. The medications are helping almost all symptoms however...

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