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Read conversations, start a discussion, and connect with others about narcolepsy.

How bad was your quality of life before diagnosis?

Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me...

Being able to clean one room at a time.

I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up...

Housework

Narcolepsy without Cataplexy is a diagnosis on my medical records along with EDS. I see remarks about people thinking you’re lazy. I...

What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?

New strategies...

Service dog ?

Does anyone have a service dog to help manage symptoms of narcolepsy? What was the profess to get a service dog like?...

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What is the one thing you can't live without?

If you could only have one thing that you couldn't live without that helps you cope with your symptoms, what would that...

It's hard saying no to things because of Narcolepsy...

This evening a friend asked me to go shopping with them tomorrow. Of course I wanted to hang out with them and...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

Extreme lethargy, lower concentration and awareness

Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy?...

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