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Read conversations, start a discussion, and connect with others about narcolepsy.

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Housework

Narcolepsy without Cataplexy is a diagnosis on my medical records along with EDS. I see remarks about people thinking you’re lazy. I...

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My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight...

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Narcolepsy and Stress

Do you find that stress increases your daytime sleepiness or other symptoms?...

Active yesterday

Scared to try Xyrem

I’ve just been prescribed Xyrem to manage my cataplexy and plan to start it this weekend. I’m scared in case it makes...

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Where is the most embarrassing place you have fallen asleep?

Share your answers below!...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Coffee

When is too much too much ? I don't drink it I eat mine for breakfast and lunch but never before dinner...

Cannot Focus

I cannot focus. I'm exhausted and disgusted with treatment. I've had four sleep studies and the doctor told me I have narcolepsy...

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ADHD

For some of you who have ADHD : Do you have the same stimulants for ADHD & Narcolepsy? Does it work for...

Let's Make a List of our Memory Symptoms

I thought it would be great for us to have a really good list of our memory symptoms. After looking around I...

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