Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

Does anyone experience recurring catatonia with cataplexy and constant sleep attacks?

Health services in my area are unaware of narcolepsy resulting in misdiagnosis and incorrect treatments. At age 18 sudden onset of symptoms started during the pandemic, psychiatry and neurology ruled...

Paddle board safety?

I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...

Does this sound like cataplexy, or could it be something else?

I fear this may be a long post, but I'm really hoping it can help me with finding answers. So, almost 2 years ago I first learned what cataplexy was...

Featured

What’s helpful during cataplexy attacks?

Cataplexy attacks can be outwardly shocking to observe. They can also be dangerous for those of us who experience them. When I have full-body cataplexy attacks the people around me...

Cataplexy & Intimacy

I really don’t want to be posting this, since my or anyone else’s sex life isn’t something I ever want to discuss in a public forum, but I have questions...

Narcolepsy/ Doctors/ St. Louis

I am looking for sleep doc suggestions from Narcoleptics that experience chronic Cataplexy in the St. Louis area....

Parenting with narcolepsy type 1

Hello, I am Jazmane, I am 30 years old, and I am a single mother of 2 handsome boys. Can you imagine the energy of a 7- and 2-year-old everyday...

Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!...

Cataplexy war scars

I'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...

Cataplexy Treatment - Venlafaxine

I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so...

Categories

Select a category to find topics that interest you.