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Read conversations, start a discussion, and connect with others about narcolepsy.

Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!...

Advice

Hi all I've just got my results from my polysomnography and MSLT. Before this I reduced my dose and came off Pregabalin, Fluoxetine and Zolpidem. I'm currently taking no medication...

Narcolepsy medications and heart problems

I just turned 50 and have been talking Adderall for almost 30 years and while I am not thrilled to have to take amphetamines, I have been fortunate to live...

Sleep meds

I have narcolepsy and have been taking zopiclone 15mg. I no longer find it effective. What are others taking?...

Trusting God for healing

Im encouraging everyone thats dealing with Narcolepsy to trust in God for healing and do know that with strong faith healing is possible just as God healed people in the...

Cataplexy war scars

I'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...

Surprising Symptoms of Narcolepsy

What are your most surprising symptoms of narcolepsy? How do you manage them?...

Tips for Parents with Narcolepsy

For those who are parents in the community, are there any tips you could give to other parents living with narcolepsy?...

Narcolepsy and weight loss injections (Wagvoy, etc)

I discovered this forum as I began to research these injections commonly used as a means of treatment for weight loss. {Please do try and bare with me here! I'll...

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

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