How bad was your quality of life before diagnosis?Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me, I would often go entire months without a...Reactions 0 reactions Comments12 repliesWork & EmploymentSymptomsCoping
Will you take our In America survey to share the truth about life with narcolepsy?Thank you for participating. This survey has closed. From daytime sleepiness to cataplexy and brain fog, narcolepsy can impact all aspects of life. To better understand the patient experience and realities...Reactions 0 reactions Comments0 repliesAwarenessResearch & Clinical Trials
Stopping MedicationDoes anyone ever feel as though they would prefer to live without medication?...Reactions 0 reactions Comments17 repliesPrescription MedicationCopingSide Effects
NappingWhat is the strangest/ most interesting place or funniest (to you) experience taking a nap? To name a couple, I have napped on a sofa in the outdoor area of...Reactions 0 reactions Comments8 repliesDaytime sleepiness
Falling asleep all of a suddenI notice when I fall asleep all of a sudden that be the deepest sleep ever and I feel relaxed when I awake. How about everyone else?...Reactions 0 reactions Comments2 repliesDaytime sleepiness
Cannabis and Narcolepsy?First off, I don't have an official narcolepsy diagnosis. I have been suffering from sleep problems on and off for about 20 years now, though. When it's bad, it's really...Reactions 0 reactions Comments2 repliesTreatmentMedical MarijuanaDiagnosis
Living withI was diagnosed 32 years ago. I used to be on medication for narcolepsy but stopped taking it a long time ago. I have learned over time that taking naps...Reactions 0 reactions Comments2 replies
Narcolepsy Flares Around Hormone CyclesIt's been almost a year since I was diagnosed with Narcolepsy and Cataplexy and over the past 6 months, every month, I have really debilitating symptoms and my meds stop...Reactions 0 reactions Comments4 repliesCataplexyNewly DiagnosedSymptoms
FeaturedWhen experiencing cataplexy, what’s the best thing someone can do to help?How can people support you when experiencing a cataplexy attack? Share your suggestions below!...Reactions 0 reactions Comments12 repliesCataplexy
Xywav and StimulantsI'm currently on 70 mg Vyvanse every morning with 10 mg Adderall IR as needed for later in the day. I am about to try Xywav for the first time...Reactions 0 reactions Comments2 repliesPrescription MedicationTips & AdviceTreatment