troble with getting diagnosisThe following youtube video is my experience with seeking a diagnosis for the symptoms I have For over 12 years I was back and forth to doctors begging for help...Reactions0reactionsComments1 repliesDiagnosis
Addressing Narcolepsy MisconceptionsWhat misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...Reactions0reactionsComments13 repliesFriends & FamilyStigma
Doctors disagree on diagnosis, medication anxietyLast year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...Reactions0reactionsComments5 repliesCopingDaytime sleepinessDiagnosis
Will you take our In America survey and help others understand the impact of narcolepsy? The In America survey is now closed. To learn more about the challenges of living with narcolepsy, we are conducting our In America survey. By taking our survey, you can...Reactions0reactionsComments0 replies
Do You Prefer A Set Timer For Your Naps?When taking a nap, do you prefer to set a timer for a specific amount of time, or to sleep until you wake up? Which works better for you and...Reactions0reactionsComments5 repliesTips & Advice
Alarm clock suggestions? All throughout college before my diagnosis people from professors would suggest I set an alarm or ask me if I can “just use an alarm clock” to make it to...Reactions0reactionsComments8 repliesTips & Advice
Being able to clean one room at a time. I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up kitchen, but before I can start, I have...Reactions0reactionsComments1 repliesTips & AdviceCopingSymptoms
How do you manage narcolepsy at work?Share your tips, strategies, and experiences in managing work responsibilities while navigating life with narcolepsy....Reactions0reactionsComments2 replies
switching providers and not having medication for over 30 daysI am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...Reactions0reactionsComments7 repliesCopingHealthcare TeamPrescription Medication
Are there jobs that are off-limits?The other day I was telling a friend of mine that I had jokingly applied to be a flight attendant (even though I'm pretty sure I won't get it lol)...Reactions0reactionsComments4 repliesTips & AdviceTravelWork & Employment