Medication rollercoasterFor some reason none of these medications are working for me. Xyrem made me feel well rested but at night, I had severe stomach aches. I was sleepwalking and hallucinating...Reactions 0 reactions Comments2 replies
What triggers your cataplexy?What is your biggest cataplexy trigger? Have you found ways to help manage your triggers...Reactions 0 reactions Comments2 repliesCataplexyTips & Advice
Filing for DisabilityAre there any tips or advice you can give to those who want to file for disability benefits? Have you been through the process and how was it...Reactions 0 reactions Comments2 repliesWork & Employment
New symptomHi everyone, This is my first post as I have not been diagnosed. I have been struggling for years with excessive daytime sleepiness. It seems to just get worse as...Reactions 0 reactions Comments5 repliesDreamsSleep ParalysisSymptoms
My Sister Needs Help with Her NarcolepsyMy sister has extreme symptoms of narcolepsy, sudden collapse of muscles, and falling to the ground, the worst of them all is affecting her speech functions. A few months after...Reactions 0 reactions Comments7 replies
Service dog ?Does anyone have a service dog to help manage symptoms of narcolepsy? What was the profess to get a service dog like? Has it been helpful for you...Reactions 0 reactions Comments4 repliesCoping
Semester off from college?I’ve always been a highly motivated, strong student, but I just cannot keep up with my work anymore due to narcolepsy and the way my stimulant medication exacerbates my already...Reactions 0 reactions Comments2 repliesCoping
Have you found sunlight to affect your sleep?Have you found sunlight (or the lack thereof) to affect your ability to sleep? For example, during daylight saving time in the summertime when there is a lot more sun...Reactions 0 reactions Comments4 replies
Shopping with narcolepsy! Do you have any strategies for coping with symptoms?What are your experiences like shopping while living with narcolepsy? Do you have any strategies that make things easier while shopping? Please share with us...Reactions 0 reactions Comments3 repliesTips & AdviceCoping
Travel TipsDoes anyone have tips for traveling long distances? How do you prepare before the trip? What do you bring with you to help manage symptoms and maximize comfort...Reactions 0 reactions Comments3 repliesTravel
