Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Who do you turn to for support?

When you need it most, who do you turn to for support? Family, friend(s), online community, therapist, local support groups, etc.?...

Have you heard about the narcolepsy drug recall?

A few days ago, FiercePharma reported that a drug prescribed for narcolepsy and ADHD, Zenzedi, is being recalled because a pharmacist found...

troble with getting diagnosis

The following youtube video is my experience with seeking a diagnosis for the symptoms I have For over 12 years I was...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

Will you take our In America survey and help others understand the impact of narcolepsy?

The In America survey is now closed. To learn more about the challenges of living with narcolepsy, we are conducting our In...

Do You Prefer A Set Timer For Your Naps?

When taking a nap, do you prefer to set a timer for a specific amount of time, or to sleep until you...

Alarm clock suggestions?

All throughout college before my diagnosis people from professors would suggest I set an alarm or ask me if I can “just...

Being able to clean one room at a time.

I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up...

How do you manage narcolepsy at work?

Share your tips, strategies, and experiences in managing work responsibilities while navigating life with narcolepsy....

Categories

Select a category to find topics that interest you.