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Read conversations, start a discussion, and connect with others about narcolepsy.

Suspected Narcolepsy

Hello everyone! I have been suspecting I have narcolepsy for a couple of years now and finally began seeking help as falling asleep at my desk is no way to...

Diagnosis

I was born premature 1 pound 9 oz thank God for bringing me thus far. Fast-forward to 2014: Got diagnosed with Narcolepsy without cataplexy but my disorder began with sleep...

Checking in

What's good my friends. How is everyone doing. I hope everyone is doing well. Just checking in on everyone...

Experience with Tufts Medicare Insurance and Xyrem/Xywav

I am turning 65 soon and will have to change insurance plans when I go on Medicare. I have been on Xyrem for a few years now. I live in...

Encouraging words

Do anyone experience people thinking it's a mental issue when you tell them or explain to them your Narcolepsy disorder? Anyway I speak hope and gladness to each of you...

World Narcolepsy Day is September 22nd!

What does World Narcolepsy Day mean to you and how do you plan to celebrate the day? Share below....

Narcolepsy and the Workplace

How has narcolepsy affected your ability to work? What was the hardest part about working with narcolepsy? Do you have any tips for others who are navigating narcolepsy in the...

Narcolepsy topics

My Narcolepsy w/o cataplexy disorder is so bad until I when I'm passenger seat riding in the car with my wife I falls asleep swiftly like if me and my...

How do you manage brain fog?

Is brain fog one of your narcolepsy symptoms? What are some things that help you cope?...

Medication rollercoaster

For some reason none of these medications are working for me. Xyrem made me feel well rested but at night, I had severe stomach aches. I was sleepwalking and hallucinating...

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