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Read conversations, start a discussion, and connect with others about narcolepsy.

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My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight...

Being able to clean one room at a time.

I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up...

The best narcolepsy advice I've ever gotten was _____.

What is the best advice you've ever gotten on living with narcolepsy? How has this advice positively influenced your narcolepsy journey? Please...

Housework

Narcolepsy without Cataplexy is a diagnosis on my medical records along with EDS. I see remarks about people thinking you’re lazy. I...

What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?

New strategies...

Service dog ?

Does anyone have a service dog to help manage symptoms of narcolepsy? What was the profess to get a service dog like?...

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What is the one thing you can't live without?

If you could only have one thing that you couldn't live without that helps you cope with your symptoms, what would that...

It's hard saying no to things because of Narcolepsy...

This evening a friend asked me to go shopping with them tomorrow. Of course I wanted to hang out with them and...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

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