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Read conversations, start a discussion, and connect with others about narcolepsy.

Shedule

I am 21 y.o now, and I've had narcolepsy for 5 years now. During these years, I gained 38 kg of weight, and failed to be successful at my studies...

Could this be cataplexy?

My teeth chatter (like when it's cold outside) when I am sobbing or when I laugh really, really hard for a long time. Could this be cataplexy? I told the...

How bad was your quality of life before diagnosis?

Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me, I would often go entire months without a...

Will you take our In America survey to share the truth about life with narcolepsy?

Thank you for participating. This survey has closed. From daytime sleepiness to cataplexy and brain fog, narcolepsy can impact all aspects of life. To better understand the patient experience and realities...

Stopping Medication

Does anyone ever feel as though they would prefer to live without medication?...

Napping

What is the strangest/ most interesting place or funniest (to you) experience taking a nap? To name a couple, I have napped on a sofa in the outdoor area of...

Cannabis and Narcolepsy?

First off, I don't have an official narcolepsy diagnosis. I have been suffering from sleep problems on and off for about 20 years now, though. When it's bad, it's really...

Living with

I was diagnosed 32 years ago. I used to be on medication for narcolepsy but stopped taking it a long time ago. I have learned over time that taking naps...

Narcolepsy Flares Around Hormone Cycles

It's been almost a year since I was diagnosed with Narcolepsy and Cataplexy and over the past 6 months, every month, I have really debilitating symptoms and my meds stop...

Featured

When experiencing cataplexy, what’s the best thing someone can do to help?

How can people support you when experiencing a cataplexy attack? Share your suggestions below!...

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