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Read conversations, start a discussion, and connect with others about narcolepsy.

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Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

Adrenalin

Every time I get a surge of adrenaline I have a cataplexic event that's like slipping into a dream. I used to...

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What Is Your Caption For This Narcolepsy Image?

How would you caption the image here?...

How bad was your quality of life before diagnosis?

Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me...

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My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight...

Being able to clean one room at a time.

I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up...

Housework

Narcolepsy without Cataplexy is a diagnosis on my medical records along with EDS. I see remarks about people thinking you’re lazy. I...

What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?

New strategies...

Service dog ?

Does anyone have a service dog to help manage symptoms of narcolepsy? What was the profess to get a service dog like?...

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What is the one thing you can't live without?

If you could only have one thing that you couldn't live without that helps you cope with your symptoms, what would that...

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