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Read conversations, start a discussion, and connect with others about narcolepsy.

It's hard saying no to things because of Narcolepsy...

This evening a friend asked me to go shopping with them tomorrow. Of course I wanted to hang out with them and go shopping, so I said 'yes'! Then after...

Diagnosis of Hypersomnia

Hi all, (I wanted to post this as a different discussion, but this is really a follow-up/update on my initial question found here: https://narcolepsy.sleep-disorders.net/forums/does-your-daily-schedule-affect-narcolepsy-symptoms#reply-164293.) My sleep study has been completed...

How bad was your quality of life before diagnosis?

Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me, I would often go entire months without a...

What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?

New strategies...

How are your holidays looking?

Hey! Just wanted to know how everyone is coping with the upcoming holidays, if you're having any difficulties or even if you just have any cool plans?? Wishing everyone happy...

Will you take our In America survey to share the truth about life with narcolepsy?

From sleep attacks to cataplexy, there’s so much more to life with narcolepsy than most people know. Help contribute to a better understanding of living with narcolepsy by taking our...

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What is the one thing you can't live without?

If you could only have one thing that you couldn't live without that helps you cope with your symptoms, what would that be? (Can be a thing, a person, a...

I am not diagnosed but would like to know some tips to deal with excessive tiredness and nap attacks

So I don't have a diagnosis yet, and may not even have narcolepsy. I have Long-COVID and it is presenting as that but who even knows with that sort of...

Tips for studying

I'm studying for an big exam...

Community meetings?

Hello! I am curious to learn if there are any online meetings here. I live in Russia and the situation with narcolepsy support in my country is literally non-existent....

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