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Read conversations, start a discussion, and connect with others about narcolepsy.

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

Extreme lethargy, lower concentration and awareness

Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy?...

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Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been...

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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

Narcolepsy & Finances

Do you feel that narcolepsy has had an impact on your finances? In what ways (employment changes, increased healthcare costs, etc.)?...

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a...

Surprising Symptoms of Narcolepsy

What are your most surprising symptoms of narcolepsy? How do you manage them?...

just started having parasomnia nonsense

A few months ago, i started punching and kicking my wife in my sleep. We've been married for 40 years, narcoleptic for...

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